July 2018


Future of Privacy Forum and Leading Genetic Testing Companies Announce Best Practices to Protect Privacy of Consumer Genetic Data

Washington, DC – Today, Future of Privacy Forum, along with leading consumer genetic and personal genomic testing companies 23andMe, Ancestry, Helix, MyHeritage, and Habit, released Privacy Best Practices for Consumer Genetic Testing Services. The Best Practices provide a policy framework for the collection, protection, sharing, and use of Genetic Data generated by consumer genetic testing services. These services are commonly offered to consumers for testing and interpretation related to ancestry, health, nutrition, wellness, genetic relatedness, lifestyle, and other purposes.


Policy Brief: European Commission’s Strategy for AI, explained

The European Commission published a Communication on “Artificial Intelligence for Europe” on April 24th 2018. It highlights the transformative nature of AI technology for the world and it calls for the EU to lead the way in the approach of developing AI on a fundamental rights framework. AI for good and for all is the motto the Commission proposes. The Communication could be summed up as announcing concrete funding for research projects, clear social goals and more thinking about everything else.


FPF Publishes Report Supporting Stakeholder Engagement and Communications for Researchers and Practitioners Working to Advance Administrative Data Research

The ADRF Network is an evolving grassroots effort among researchers and organizations who are seeking to collaborate around improving access to and promoting the ethical use of administrative data in social science research. As supporters of evidence-based policymaking and research, FPF has been an integral part of the Network since its launch and has chaired the network’s Data Privacy and Security Working Group since November 2017.