One key method for ensuring privacy while processing large amounts of data is de-identification. De-identified data refers to data through which a link to a particular individual cannot be established. This often involves “scrubbing” the identifiable elements of personal data, making it “safe” in privacy terms while attempting to retain its commercial and scientific value.
In the era of big data, the debate over the definition of personal information, de-identification and re-identification has never been more important. Privacy regimes often rely on data being considered Personal in order to require the application of privacy rights and protections. Data that is anonymous is considered free of privacy risk and available for public use.
Yet much data that is collected and used exists somewhere on a spectrum between these stages. FPF’s De-ID Project has examined practical frameworks for applying privacy restrictions to data based on the nature of data that is collected, the risks of de-identification, and the additional legal and administrative protections that may be applied.
Mandating “Evidence-Based” Suicide Detection in Chatbots
Co-authored by Sarah Hanson, FPF Health & Wellness Intern This article discusses suicidal ideation, which may be distressing for some readers. (If you or someone you know is struggling, help is available. You can call or text the Suicide & Crisis Lifeline at 988 or visit 988 Lifeline for free, confidential, 24/7 support.) As many […]
Celebrating Another Year of Privacy and AI Governance: FPF at the 2026 IAPP Global Summit
Authored by FPF Communications Intern Celeste Valentino FPF experts participated in the 2026 IAPP Global Summit and hosted FPF privacy executive convenings in Washington, D.C. from March 31 to April 2. As a major gathering for privacy professionals, the event featured a heavy schedule of workshops and panels focused on the intersection of U.S. and […]
FPF Year in Review 2025
Co-authored by FPF Communications Intern Celeste Valentino with contributions from FPF Global Communications Manager Joana Bala This year, FPF continued to broaden its footprint across priority areas of data governance, further expanding activities across a range of cross-sector topics, including AI, Youth, Conflict of Laws, AgeTech (seniors), and Cyber-Security. We have engaged extensively at the local […]
Twelve Privacy Investments for Your Company for a Stronger 2025
FPF has put together a list of Twelve Privacy Investments for Your Company for a Stronger 2025 that reflects on new perspectives on the work that privacy teams do at their organizations. We hope there is something here that’s useful where you work, and we’d love to hear other ideas and feedback. Privacy Investments for Your […]
The North Star State Joins the State Privacy Law Constellation
On May 19, 2024, the Minnesota Legislature passed HF 4757, an omnibus budget bill that includes the Minnesota Consumer Data Privacy Act (MNCDPA). The bill now heads to Governor Walz for signature. Developed by State Representative Steve Elkins over nearly five years and multiple legislative sessions, the MNCDPA is among the strongest iterations of the […]
The Old Line State Does Something New on Privacy
On April 6, the Maryland Senate concurred with House amendments to SB 541, the Maryland Online Data Privacy Act (MODPA), sending the bill to Governor Moore for signature. If enacted, MODPA could be a paradigm-shifting addition to the state privacy law landscape. While recent state comprehensive privacy laws generally have added to the existing landscape […]
The DNA of Genetic Privacy Legislation: Montana, Tennessee, Texas, and Virginia Enter 2024 with New Genetic Privacy Laws Incorporating FPF’s Best Practices
In 2023, four states enacted new genetic privacy laws regulating direct-to-consumer genetic testing companies. This blog post provides details on what these new laws cover and how they compare to FPF’s widely-adopted Best Practices for Consumer Genetic Testing Services. Genetic privacy has been under increasing scrutiny at the state and federal levels, and regulators are […]
FPF Files Comments with the Consumer Financial Protection Bureau Regarding Personal Financial Data Rights
On December 21st, 2023, the Future of Privacy Forum filed comments with the Consumer Financial Protection Bureau (CFPB) in response to the notice of proposed rulemaking (NPRM) regarding personal financial data rights. FPF’s comments focus on promoting privacy as a core tenet in the U.S. open banking ecosystem in order to protect individuals’ personal information […]
The Right to be Let a Lone Star State: Texas Passes Comprehensive Privacy Bill
Over Memorial Day weekend Texas lawmakers passed the Texas Data Privacy and Security Act (TDPSA) with unanimous votes in both the State House and Senate. If enacted by Governor Abbott, Texas will become the tenth U.S. state (and fifth in 2023) to enact broad-based data privacy legislation governing the collection, use, and transfer of consumer […]
Knowledge is Power: The Future of Privacy Forum launches FPF Training Program
“An investment in knowledge always pays the best interest”–Ben Franklin Let’s make 2023 the year we invest in ourselves, our teams, and the knowledge needed to best navigate this dynamic world of privacy and data protection. I am fortunate to know many of you who will read this blog post, but for those who I […]