Healthcare technologies are rapidly evolving, producing new data types and innovative data uses. Data and technology can bring significant enhancements to the healthcare system, deepen patients’ and consumers’ engagement and understanding about their health, and be used as part of initiatives meant to improve health outcomes. It is critical to analyze how sensitive health and wellness data affect individual privacy and understand what it means for doctors, researchers, and companies to responsibly use such data. The FPF health team continues to build on its prior work on Consumer Wearables and Wellness Apps and Devices and Privacy Best Practices for Consumer Genetic Testing Services by exploring and addressing issues at the forefront and intersection of health, data, and privacy. Of main focus are the privacy challenges related to the collection, use, and sharing of both medical data and data that falls outside of the scope of HIPAA and FDA regulations. FPF brings together stakeholders to analyze how new technologies and data practices in the health ecosystem can impact individual privacy and promote the more effective and ethical use of data.
No Silver Bullet, But a Silver Lining? PETs and International Data Transfers
Is there a role for Privacy Enhancing Technologies (PETs) to play in the context of international data transfers? The answer to this question could be one of the keys to unlock trusted cross-border data flows at scale in the age of AI. This was the topic explored in a session organized by the Future of […]
Africa’s Data Protection Reforms: A Continental Perspective on the Drivers of Change in Legal Frameworks
1. Introduction Within an evolving digital landscape, several African jurisdictions have proposed a variety of reforms to existing and novel legal frameworks that regulate the processing of personal data, and the development and deployment of new technologies. Across the continent, there is a growing consensus among legislators on the need to create a regulatory environment […]
Chile’s New Data Protection Law: Context, Overview, and Key Takeaways
On August 26, 2024, the Chilean Congress approved Law 21.719, on the Protection of Personal Data (“LPPD”) after eight years of legislative debate. The legislation was published on December 13, 2024, and will become fully effective twenty-four months after that date (in December 2026). The LPPD was introduced in the Senate in 2017 to replace […]
Twelve Privacy Investments for Your Company for a Stronger 2025
FPF has put together a list of Twelve Privacy Investments for Your Company for a Stronger 2025 that reflects on new perspectives on the work that privacy teams do at their organizations. We hope there is something here that’s useful where you work, and we’d love to hear other ideas and feedback. Privacy Investments for Your […]
FPF in 2023: A Year in Review
As 2023 comes to an end, we want to reflect on a year that saw the Future of Privacy Forum (FPF) continue to expand its presence globally and domestically while organizing engaging events, publishing thought-provoking analysis, providing the latest expert updates, and more. FPF continues to convene industry experts, academics, consumer advocates, and other experts […]
Race Equity, Surveillance in the Post-Roe Era, and Data Protection Frameworks in the Global South are Major Topics During This Year’s Privacy Papers for Policymakers Event
Author: Randy Cantz, U.S. Policy Intern, Ethics and Data in Research and former Communications Intern at FPF The Future of Privacy Forum (FPF) hosted a Capitol Hill event honoring 2022’s must-read privacy scholarship at the 13th annual Privacy Papers for Policymakers Awards ceremony. This year’s event featured an opening keynote by FTC Commissioner Alvaro Bedoya […]
This Year’s Must-Read Privacy Papers to be Honored at Capitol Hill Event
The Future of Privacy Forum’s 13th Annual Privacy Papers for Policymakers Award Recognizes Influential Privacy Research Today, the Future of Privacy Forum (FPF) — a global non-profit focused on data protection headquartered in Washington, D.C. — announced the winners of its 13th annual Privacy Papers for Policymakers (PPPM) Awards. The PPPM Awards recognize leading privacy […]
FPF in 2021: Delivering Privacy Insights & Expert Analysis
With the last days of 2021 upon us, we wanted to take a moment to reflect on this exciting year that saw FPF expand its presence both domestically and around the globe, while producing engaging events, thought-provoking analysis, and insightful reports with real-world impact. Growing Global Expertise The scope of FPF’s international work continued to […]
Event Report: From “Consent-Centric” Frameworks to Responsible Data Practices and Privacy Accountability in Asia Pacific
On September 16, the Asia-Pacific office of the Future of Privacy Forum (FPF) held its first event following its launch in August 2021. This event was hosted by the Personal Data Protection Commission (PDPC) of Singapore during the very popular “Personal Data Protection week” (PDP Week 2021). The theme of the event was Exploring trends: […]
FPF Launches Asia-Pacific Region Office, Global Data Protection Expert Clarisse Girot Leads Team
The Future of Privacy Forum (FPF) has appointed Clarisse Girot, PhD, LLM, an expert on Asian and European privacy legislation, to lead its new FPF Asia-Pacific office based in Singapore as Director. This new office expands FPF’s international reach in Asia and complements FPF’s offices in the U.S., Europe, and Israel, as well as partnerships […]