Healthcare technologies are rapidly evolving, producing new data types and innovative data uses. Data and technology can bring significant enhancements to the healthcare system, deepen patients’ and consumers’ engagement and understanding about their health, and be used as part of initiatives meant to improve health outcomes. It is critical to analyze how sensitive health and wellness data affect individual privacy and understand what it means for doctors, researchers, and companies to responsibly use such data. The FPF health team continues to build on its prior work on Consumer Wearables and Wellness Apps and Devices and Privacy Best Practices for Consumer Genetic Testing Services by exploring and addressing issues at the forefront and intersection of health, data, and privacy. Of main focus are the privacy challenges related to the collection, use, and sharing of both medical data and data that falls outside of the scope of HIPAA and FDA regulations. FPF brings together stakeholders to analyze how new technologies and data practices in the health ecosystem can impact individual privacy and promote the more effective and ethical use of data.
Five Top of Mind Data Protection Recommendations for Brain-Computer Interfaces
By Jeremy Greenberg, [email protected] and Katelyn Ringrose [email protected]. Key FPF-curated background resources – policy & regulatory documents, academic papers, and technical analyses regarding brain-computer interfaces are available here. Recently, Elon Musk livestreamed an update for Neuralink—his startup centered around creating brain-computer interfaces (BCIs). BCIs are an umbrella term for devices that detect, amplify, and translate […]
Limor Shmerling Magazanik Joins Israel Tech Policy Institute as Managing Director and Future of Privacy Forum as Senior Fellow
Washington, DC – November 20, 2018 – The Israel Tech Policy Institute and Future of Privacy Forum today announced Limor Shmerling Magazanik as ITPI Managing Director and FPF Senior Fellow. In this role, Magazanik will provide leadership on day-to-day operational matters of ITPI, including directing ITPI’s policy agenda; engaging policymakers, regulators, academics, and business leaders; convening multi stakeholder groups for discussion; and overseeing communications with the public and the advisory board.
Upcoming Future of Privacy Forum Events
In the coming months, FPF will be hosting or co-hosting a number of events. We welcome your attendance and participation. Please contact us at [email protected] for further information.
FPF Welcomes New Senior Fellow
FPF is pleased to welcome Henry Claypool as a senior fellow. Henry is currently Policy Director at the Community Living Policy Center at the University of California, San Francisco. He is the former Director of the U.S. Department of Health and Human Services Office on Disability and a founding Principal Deputy Administrator of the Administration for Community Living.