Healthcare technologies are rapidly evolving, producing new data types and innovative data uses. Data and technology can bring significant enhancements to the healthcare system, deepen patients’ and consumers’ engagement and understanding about their health, and be used as part of initiatives meant to improve health outcomes. It is critical to analyze how sensitive health and wellness data affect individual privacy and understand what it means for doctors, researchers, and companies to responsibly use such data. The FPF health team continues to build on its prior work on Consumer Wearables and Wellness Apps and Devices and Privacy Best Practices for Consumer Genetic Testing Services by exploring and addressing issues at the forefront and intersection of health, data, and privacy. Of main focus are the privacy challenges related to the collection, use, and sharing of both medical data and data that falls outside of the scope of HIPAA and FDA regulations. FPF brings together stakeholders to analyze how new technologies and data practices in the health ecosystem can impact individual privacy and promote the more effective and ethical use of data.
FPF Hosts Frontiers Workshop on Privacy, AI, and Emerging Infrastructure
On June 10, 2026, the FPF Center for Artificial Intelligence convened a Frontiers Workshop in Washington, DC. Held as part of FPF’s National Science Foundation (NSF) and the Department of Energy (DoE)-funded Privacy-Enhancing Technologies (PETs) Research Coordination Network, the workshop brought together privacy and frontier AI practitioners to examine challenges at the intersection of data […]
Perseverance Pays Off for Vermont Privacy Efforts
Vermont has become the 23rd U.S. state to enact a comprehensive consumer privacy law after Governor Scott signed S.71, the Vermont Data Privacy and Online Surveillance Act (VDPOSA), on June 16. This new law is amongst the broadest in the country, closely resembling the 2025 version of the Connecticut Data Privacy Act (CTDPA). For example, […]
“Personality vs. Personalization” in AI Systems: Intersection with Evolving U.S. Law (Part 3)
This post is the third in a series on personality versus personality in AI systems. Read Part 1 (exploring concepts) and Part 2 (concrete uses and risks). Conversational AI technologies are hyper-personalizing. Across sectors, companies are focused on offering personalized experiences that are tailored to users’ preferences, behaviors, and virtual and physical environments. These […]
FPF Unveils Report on the Anatomy of State Comprehensive Privacy Law
Today, the Future of Privacy Forum (FPF) launched a new report—Anatomy of State Comprehensive Privacy Law: Surveying the State Privacy Law Landscape and Recent Legislative Trends. By distilling this broad landscape to identify the “anatomy” of state comprehensive privacy law, this report highlights the strong commonalities and the nuanced differences between the various laws, showing […]
Top Six Major Privacy Enforcement Trends: A U.S. Legislation Retrospective
Enforcement activity intensifies as U.S. consumer privacy laws continue to evolve and come into effect. In 2023 and 2024 alone, there have been dozens of enforcement actions at the U.S. federal and state levels, some of which reveal or touch on significant throughlines for privacy policy issues, such as what constitutes a privacy violation or […]
FPF in 2023: A Year in Review
As 2023 comes to an end, we want to reflect on a year that saw the Future of Privacy Forum (FPF) continue to expand its presence globally and domestically while organizing engaging events, publishing thought-provoking analysis, providing the latest expert updates, and more. FPF continues to convene industry experts, academics, consumer advocates, and other experts […]
New Report Highlights LGBTQ+ Student Views on School Technology and Privacy
The Future of Privacy Forum and LGBT Tech outline recommendations for schools and districts to balance inclusion and student safety in technology use. Today, the Future of Privacy Forum (FPF), a global non-profit focused on privacy and data protection, and LGBT Tech, a national, nonpartisan group of LGBT organizations, academics, and high technology companies, released […]
FPF in 2022: A Year in Review
As 2022 comes to an end, we wanted to reflect on a year that saw the Future of Privacy Forum (FPF) expand its presence both domestically and around the globe, while producing engaging events, thought-provoking analysis, and insightful publications. Global Expansion In 2022, FPF closely followed and advised upon significant developments in Asia, the European […]
ITPI: New OECD-Israel Workshop January 2021 Report
The Israel Tech Policy Institute (ITPI) is excited to share a new report on key issues emerging from the OECD Workshop: ‘Supporting Health Innovation with Fair Information Practice Principles‘. The OECD Workshop was held virtually from 19 – 20 January 2021, in collaboration with the Israeli Ministry of Health and the Israel Tech Policy Institute. The report was drafted by Limor Shmerling […]
BCIs & Data Protection in Healthcare: Data Flows, Risks, and Regulations
This post is the second in a four-part series on Brain-Computer Interfaces (BCIs), providing an overview of the technology, use cases, privacy risks, and proposed recommendations for promoting privacy and mitigating risks associated with BCIs. Click here for FPF and IBM’s full report: Privacy and the Connected Mind. In case you missed it, read the […]