Healthcare technologies are rapidly evolving, producing new data types and innovative data uses. Data and technology can bring significant enhancements to the healthcare system, deepen patients’ and consumers’ engagement and understanding about their health, and be used as part of initiatives meant to improve health outcomes. It is critical to analyze how sensitive health and wellness data affect individual privacy and understand what it means for doctors, researchers, and companies to responsibly use such data. The FPF health team continues to build on its prior work on Consumer Wearables and Wellness Apps and Devices and Privacy Best Practices for Consumer Genetic Testing Services by exploring and addressing issues at the forefront and intersection of health, data, and privacy. Of main focus are the privacy challenges related to the collection, use, and sharing of both medical data and data that falls outside of the scope of HIPAA and FDA regulations. FPF brings together stakeholders to analyze how new technologies and data practices in the health ecosystem can impact individual privacy and promote the more effective and ethical use of data.
Mandating “Evidence-Based” Suicide Detection in Chatbots
Co-authored by Sarah Hanson, FPF Health & Wellness Intern This article discusses suicidal ideation, which may be distressing for some readers. (If you or someone you know is struggling, help is available. You can call or text the Suicide & Crisis Lifeline at 988 or visit 988 Lifeline for free, confidential, 24/7 support.) As many […]
FPF Hosts Frontiers Workshop on Privacy, AI, and Emerging Infrastructure
On June 10, 2026, the FPF Center for Artificial Intelligence convened a Frontiers Workshop in Washington, DC. Held as part of FPF’s National Science Foundation (NSF) and the Department of Energy (DoE)-funded Privacy-Enhancing Technologies (PETs) Research Coordination Network, the workshop brought together privacy and frontier AI practitioners to examine challenges at the intersection of data […]