Research often requires using sensitive data to answer important questions. The ethical collection and analysis of personal information can be challenging to do while still protecting the privacy of the implicated individuals, honoring informed consent, and complying with other legal obligations. The technology, policies, and ethical considerations for researchers are constantly shifting, sometimes making it difficult to keep up. That’s why FPF engages stakeholders across academia and industry to produce recommendations, best practices, and ethical review structures that promote responsible research. Our work is centered around streamlining, encouraging, and promoting responsible research that respects essential privacy and ethical considerations throughout the research lifecycle. FPF works with policymakers to develop legislative protections that support effective, responsible research with strong privacy safeguards, including hosting events that allow policymakers and regulators to engage directly with practitioners from academia, advocacy, and industry.
FPF also has an Ethics and Data in Research Working Group. This group receives late-breaking analysis of emerging legislation affecting research and data, meets to discuss the ethical and technological challenges of conducting research, and collaborates to create best practices to protect privacy, decrease risk, and increase data sharing for research, partnerships, and infrastructure. Learn more and join here.
FPF Year in Review 2025
Co-authored by FPF Communications Intern Celeste Valentino with contributions from FPF Global Communications Manager Joana Bala This year, FPF continued to broaden its footprint across priority areas of data governance, further expanding activities across a range of cross-sector topics, including AI, Youth, Conflict of Laws, AgeTech (seniors), and Cyber-Security. We have engaged extensively at the local […]
FPF Launches Major Initiative to Study Economic and Policy Implications of AgeTech
FPF and University of Arizona Eller College of Management Awarded Grant by Alfred P. Sloan Foundation to Address Privacy Implications, and Data Uses of Technologies Aimed at Aging At Home The Future of Privacy Forum (FPF) — a global non-profit focused on data protection, AI and emerging technologies–has been awarded a grant from the Alfred […]