Research often requires using sensitive data to answer important questions. The ethical collection and analysis of personal information can be challenging to do while still protecting the privacy of the implicated individuals, honoring informed consent, and complying with other legal obligations. The technology, policies, and ethical considerations for researchers are constantly shifting, sometimes making it difficult to keep up. That’s why FPF engages stakeholders across academia and industry to produce recommendations, best practices, and ethical review structures that promote responsible research. Our work is centered around streamlining, encouraging, and promoting responsible research that respects essential privacy and ethical considerations throughout the research lifecycle. FPF works with policymakers to develop legislative protections that support effective, responsible research with strong privacy safeguards, including hosting events that allow policymakers and regulators to engage directly with practitioners from academia, advocacy, and industry.
FPF also has an Ethics and Data in Research Working Group. This group receives late-breaking analysis of emerging legislation affecting research and data, meets to discuss the ethical and technological challenges of conducting research, and collaborates to create best practices to protect privacy, decrease risk, and increase data sharing for research, partnerships, and infrastructure. Learn more and join here.
FPF Letter to NY State Legislature
On Friday, June 14, FPF submitted a letter to the New York State Assembly and Senate supporting a well-crafted moratorium on facial recognition systems for security uses in public schools.
FPF Comments on the California Consumer Privacy Act (CCPA)
On Friday, the Future of Privacy Forum submitted comments to the Office of the California Attorney General (AG), Xavier Becerra. Read FPF’s Full Comments (11-page letter) See Attachment 1: Comparing Privacy Laws: GDPR vs. CCPA See Attachment 2: A Visual Guide to Practical De-identification In FPF’s outreach to the AG, we commended the office for its […]
Comments to NTIA on Big Data and Privacy
Today, FPF submitted comments to the NTIA as it begins its exploration of how big data impact the Consumer Privacy Bill of Rights. While the NTIA sought comment on over a dozen key questions, our filing focus largely on four issues: (1) the need for additional clarity surrounding the flexible application of the Consumer Privacy […]
Comments for the White House "Big Data Review"
This afternoon, FPF submitted comments to help inform the White House Office of Science and Technology Policy’s “Big Data Review.” Announced in January, the White House Big Data Review has been a helpful exercise in scoping out how big data is changing our society. Through public workshops at MIT, NYU, and Berkeley, the review has […]