Research often requires using sensitive data to answer important questions. The ethical collection and analysis of personal information can be challenging to do while still protecting the privacy of the implicated individuals, honoring informed consent, and complying with other legal obligations. The technology, policies, and ethical considerations for researchers are constantly shifting, sometimes making it difficult to keep up. That’s why FPF engages stakeholders across academia and industry to produce recommendations, best practices, and ethical review structures that promote responsible research. Our work is centered around streamlining, encouraging, and promoting responsible research that respects essential privacy and ethical considerations throughout the research lifecycle. FPF works with policymakers to develop legislative protections that support effective, responsible research with strong privacy safeguards, including hosting events that allow policymakers and regulators to engage directly with practitioners from academia, advocacy, and industry.
FPF also has an Ethics and Data in Research Working Group. This group receives late-breaking analysis of emerging legislation affecting research and data, meets to discuss the ethical and technological challenges of conducting research, and collaborates to create best practices to protect privacy, decrease risk, and increase data sharing for research, partnerships, and infrastructure. Learn more and join here.
2nd Annual McGowan Forum on Ethics: The Challenge of Big Data
On October 26, 2017, John Verdi, FPF’s Vice President of Policy, was a panelist for the National Archives Foundation’s 2nd Annual McGowan Forum on Ethics: The Challenge of Big Data. The panel discussed the ethical responsibility of those who compile and track citizens’ personal data. The conversation focused around what responsibility corporations and governments have to protect their customers and be transparent in regard to possible data hacks.
Jules Polonetsky Featured on Modern Workplace
On October 11, 2016, FPF’s CEO, Jules Polonetsky, was featured on Modern Workplace for “The Privacy Balance: Staying secure and ethical with your data.” The webinar focused on how to navigate common blind spots in data security and avoid privacy pitfalls. Jules discussed tips for creating an organization that is profitable and ethical.