About this Issue

The proliferation of data collection has encouraged innovative uses of data in all corners of society. The analysis of individuals’ personal data once done by researchers in academic institutions has been embraced by a rapidly growing number of companies and not-for-profit organizations. High-profile cases of experimentation and manipulation of user data, as in the case of Facebook and OkCupid, threaten to lead organizations to keep research results confidential to avoid public scrutiny or potential legal liability. FPF calls for new regulatory frameworks and standards to protect the valuable research these organizations produce and to ensure the ethical collection and use of data for research purposes.

Beyond IRBs: Designing Ethical Review Processes for Big Data Research
Spotlight

December 10, 2015 | Stacey Gray

Beyond IRBs: Designing Ethical Review Processes for Big Data Research

Kicking off a great event this morning, Beyond IRBs: Designing Ethical Review Processes for Big Data Research, with over 60 of the country’s top academics and industry researchers. Thoughtful Key Note remarks from Professor Ryan Calo, from the University of Washington School of Law, have framed the conversation today around how best to create incentives in […]

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What's Happening: Ethics

The emerging ethical standards for studying corporate data
Top Story

June 14, 2016 | Melanie Bates

The emerging ethical standards for studying corporate data

Microsoft scientists, in an article published this week in the Journal of Oncology Practice, demonstrated that by analyzing large samples of search engine queries, they may, in some cases, be able to identify internet users who are suffering from pancreatic cancer, even before they have received a diagnosis of the disease.

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Examining Ethics, Privacy, and Research Reviews
Top Story

June 14, 2016 | Melanie Bates

Examining Ethics, Privacy, and Research Reviews

Today, the Future of Privacy Forum (FPF) and the Ohio State University’s Program on Data and Governance are holding a discussion of ethics, privacy and practical research reviews in corporate settings. This timely event, which follows the White House’s call to develop strong data ethics frameworks, convened corporate and academic leaders to discuss how to integrate ethical and privacy considerations into innovative data projects and research.

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June 14th Event: A Roundtable on Ethics, Privacy, and Research Reviews