About this Issue

The proliferation of data collection has encouraged innovative uses of data in all corners of society. The analysis of individuals’ personal data once done by researchers in academic institutions has been embraced by a rapidly growing number of companies and not-for-profit organizations. High-profile cases of experimentation and manipulation of user data, as in the case of Facebook and OkCupid, threaten to lead organizations to keep research results confidential to avoid public scrutiny or potential legal liability. FPF calls for new regulatory frameworks and standards to protect the valuable research these organizations produce and to ensure the ethical collection and use of data for research purposes.

Beyond IRBs: Designing Ethical Review Processes for Big Data Research
Spotlight

December 10, 2015 | Stacey Gray

Beyond IRBs: Designing Ethical Review Processes for Big Data Research

Kicking off a great event this morning, Beyond IRBs: Designing Ethical Review Processes for Big Data Research, with over 60 of the country’s top academics and industry researchers. Thoughtful Key Note remarks from Professor Ryan Calo, from the University of Washington School of Law, have framed the conversation today around how best to create incentives in […]

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What's Happening: Ethics

Bridging Industry and Academia to Tackle Responsible Research and Privacy Practices
Top Story

September 12, 2017 | Melanie Bates

Bridging Industry and Academia to Tackle Responsible Research and Privacy Practices

As more human interactions move online and the amount and variety of information shared digitally continues to grow, decisions regarding the collection, sharing, and use of this data must take into account both ethical and privacy considerations. It is important that industry and academia come together to find joint solutions for making these difficult decisions regarding privacy and ethics to maximize the benefits of data-driven research and practices, while ensuring that harms and negative outcomes are prevented.

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Privacy Protective Research: Facilitating Ethically Responsible Access to Administrative Data
Top Story

July 24, 2017 | Melanie Bates

Privacy Protective Research: Facilitating Ethically Responsible Access to Administrative Data

Jules Polonetsky, CEO, Future of Privacy Forum, Omer Tene, Senior Fellow, Future of Privacy Forum, and Daniel Goroff, Vice President and Program Director, Alfred P. Sloan Foundation authored a paper titled Privacy Protective Research: Facilitating Ethically Responsible Access to Administrative Data. This paper will be featured in an upcoming edition of The Annals of the American Academy of Political and Social Science.

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FPF Joins Leading Civil Society Groups, Academics and Companies to Participate in the Work of the Partnership on AI