About this Issue

The proliferation of data collection has encouraged innovative uses of data in all corners of society. The analysis of individuals’ personal data once done by researchers in academic institutions has been embraced by a rapidly growing number of companies and not-for-profit organizations. High-profile cases of experimentation and manipulation of user data, as in the case of Facebook and OkCupid, threaten to lead organizations to keep research results confidential to avoid public scrutiny or potential legal liability. FPF calls for new regulatory frameworks and standards to protect the valuable research these organizations produce and to ensure the ethical collection and use of data for research purposes.

Beyond IRBs: Designing Ethical Review Processes for Big Data Research
Spotlight

December 10, 2015 | Stacey Gray

Beyond IRBs: Designing Ethical Review Processes for Big Data Research

Kicking off a great event this morning, Beyond IRBs: Designing Ethical Review Processes for Big Data Research, with over 60 of the country’s top academics and industry researchers. Thoughtful Key Note remarks from Professor Ryan Calo, from the University of Washington School of Law, have framed the conversation today around how best to create incentives in […]

Read More

What's Happening: Ethics

New Study: Companies are Increasingly Making Data Accessible to Academic Researchers, but Opportunities Exist for Greater Collaboration
Top Story

November 14, 2017 | Melanie Bates

New Study: Companies are Increasingly Making Data Accessible to Academic Researchers, but Opportunities Exist for Greater Collaboration

Washington, DC – Today, the Future of Privacy Forum released a new study, Understanding Corporate Data Sharing Decisions: Practices, Challenges, and Opportunities for Sharing Corporate Data with Researchers. In this report, FPF reveals findings from research and interviews with experts in the academic and industry communities. Three main areas are discussed: 1) The extent to which leading companies make data available to support published research that contributes to public knowledge; 2) Why and how companies share data for academic research; and 3) The risks companies perceive to be associated with such sharing, as well as their strategies for mitigating those risks.

Read More
FPF Advisory Board Member Amie Stepanovich Discusses ‘Why Inclusion Matters’
Bridging Industry and Academia to Tackle Responsible Research and Privacy Practices
Top Story

September 12, 2017 | Melanie Bates

Bridging Industry and Academia to Tackle Responsible Research and Privacy Practices

As more human interactions move online and the amount and variety of information shared digitally continues to grow, decisions regarding the collection, sharing, and use of this data must take into account both ethical and privacy considerations. It is important that industry and academia come together to find joint solutions for making these difficult decisions regarding privacy and ethics to maximize the benefits of data-driven research and practices, while ensuring that harms and negative outcomes are prevented.

Read More