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Following the enactment of India’s Digital Personal Data Protection Act 2023 (DPDPA), the Future of Privacy Forum (FPF) and nasscom (National Association of Software and Service Companies), India’s largest industry association for the information technology sector, co-hosted a 2-part webinar series focused on the consent-centric regime under the DPDP Act. Spread across two days (November […]

In 2023, four states enacted new genetic privacy laws regulating direct-to-consumer genetic testing companies. This blog post provides details on what these new laws cover and how they compare to FPF’s widely-adopted Best Practices for Consumer Genetic Testing Services.  Genetic privacy has been under increasing scrutiny at the state and federal levels, and regulators are […]

FPF and nasscom, India’s largest industry association for the IT-BPM sector, co-hosted a second webinar series (view the first series here) on January 29 with two panels focused on making consent under India’s new Digital Personal Data Protection Act of 2023 (DPDPA) scalable. A key design feature of the DPDPA is its consent-centric approach. The […]

[…] data use, stimulate responsible scientific research and innovation, and enable individuals and society to benefit from data sharing and analytics. The RCN will operate in two interrelated parts: An interdisciplinary and cross-sector Expert Group on Privacy Enhancing Technologies for Research and Analysis focused on advancing PETs to support responsible scientific research and innovation in […]

PRIVACY PAPERS FOR POLICYMAKERS 2023 Privacy Papers for Policymakers 20231 February 27, 2024 We are pleased to introduce FPF’s 14th annual Privacy Papers for Policymakers. Each year we invite privacy scholars and authors to submit scholarship for consideration by a committee of reviewers and judges from the FPF Advisory Board. The selected papers are those […]

The Future of Privacy Forum (FPF) is a non-profit organization that serves as a catalyst for privacy leadership and scholarship, advancing principled data practices in support of emerging technologies. Learn more about FPF by visiting fpf.org . 1. Clearly distinguishes between developer and deployer responsibilities regarding AI and hiring 2. Prohibits secret use of AI […]

[…] apply, but also because businesses are now required to look at each dataset i n turn and figure out which process or obligation applies to its component parts. Companies ha ve to dive deep into the detail and the structure of each dataset, a very novel task for most of them. Taleb noted that […]

The privacy laws of both Colorado and California require organizations to recognize Universal Opt-Out Mechanisms (UOOMs), a tool through which a person can invoke their opt out rights broadly across all the websites they visit. While California has required responding to certain UOOMs since July 2021, the Colorado Attorney General has only recently approved their […]

In 2023, health data privacy developments were nearly all related to the continuing development of privacy law responses to the Supreme Court’s Dobbs decision and subsequent moves by states to bar access to certain reproductive health care services and to criminally prosecute individuals seeking access to that care. As reproductive health care remains in jeopardy […]

In 2024, health and wellness-focused companies are increasingly integrating AI to streamline their services–with the expansion of AI-enabled digital health, the universe of potential health inferences will also expand, triggering new concerns about patient and consumer privacy. At this intersection of reproductive health privacy and AI concerns, state legislators and federal regulators appear poised to […]