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FPF Releases Follow-Up Report on Consumer Genetics Companies and Practice of Transparency Reporting

Today, the Future of Privacy Forum (FPF) published “Consumer Genetic Testing Companies & The Role of Transparency Reports in Revealing Government Requests for User Data,” examining how leading consumer genetic testing companies require valid legal processes before disclosing consumer genetic information to the government, as well as how companies publish transparency reports around such disclosures. […]

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California SB 980 Would Codify Many of FPF’s Best Practices for Consumer Genetic Testing Services, but Key Differences Remain

Authors: John Verdi (Vice President of Policy) and Katelyn Ringrose (Christopher Wolf Diversity Law Fellow)  In July 2018, the Future of Privacy Forum released Privacy Best Practices for Consumer Genetic Testing Services. FPF developed the Best Practices following consultation with technical experts, regulators, leading consumer genetic and personal genomic testing companies, and civil society. The […]

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FPF Expands Health Privacy Initiative

FPF is delighted to announce that Dr. Rachele Hendricks-Sturrup has joined the staff as health policy counsel, strengthening FPF’s commitment to supporting the data protection and ethics guidelines needed for health data. In this role, Rachele will work with stakeholders to advance opportunities for data to be used for research and real world evidence, improve patient […]