Personal data – used lawfully, fairly, and transparently – is central to helping organizations achieve their missions. Today, Boards of Directors, CEOs, policymakers, and others need to understand the wide range of data inputs, the broad scope of risks and benefits, and how privacy and ethics are at the center of an organization’s ability to fulfill […]
The Future of Privacy Forum is pleased to announce the addition of Mark MacCarthy as a Senior Fellow. MacCarthy will work with FPF staff and members on data ethics, artificial intelligence and other issues. “Mark has been a leading champion for responsible data practices and has worked to incorporate thinking from academia and civil society […]
Company’s Deal with Law Enforcement Surprises Consumers and Is Out-of-Step with Industry Norms and Best Practices By John Verdi and Carson Martinez Last week, FamilyTreeDNA announced an agreement with the FBI to allow agents to test DNA samples from crime scenes, develop genetic profiles, and identify familial matches. This agreement marks the first time a […]
New FPF Study Documents More Than 150 European Companies Participating in the EU-US Data Transfer Mechanism EU Companies’ Participation Grew by One Third Over the Past Year By Jeremy Greenberg Yesterday, the European Commission published its second annual review of the EU-U.S. Privacy Shield, finding that “the U.S. continues to ensure an adequate level of […]
FPF Education Director and Policy Counsel Amelia Vance wrote a letter in response to a New York Times story on student privacy laws published earlier this week. She argued that the best way to address concerns over student privacy is to enforce and fully fund the implementation of existing laws, not add even more laws […]
On December 4th, FPF, Intel, and Duke in DC hosted “The HIPAA Privacy Rule 15 Years Later: What’s Next?” The event brought together stakeholders across the health data ecosystem to explore the current challenges related to the Health Information Portability and Accountability Act (HIPAA) Privacy Rule. Specifically, the discussion focused on solutions to mitigate restrictions to data sharing in clinical care and research due to administrative burdens, while at the same time maintain the privacy of protected health information (PHI).
The session that the Future of Privacy Forum organized for the IAPP Europe Congress in Brussels on November 28, Deciphering “legitimate interests”: actual enforcement cases and tested solutions, generated great interest among privacy professionals. We had a full house attending – more than 500 participants, according to the IAPP. The panel was based on a Report published earlier this year by the FPF and Nymity.
Washington, DC – The Future of Privacy Forum and DataGuidance have released a new report, Comparing privacy laws: GDPR v. CCPA, which analyzes and contrasts the European Union’s General Data Protection Regulation (GDPR) and the California Consumer Privacy Act of 2018 (CCPA). GDPR, which became effective in the EU on May 25, 2018, and the CCPA, scheduled to go into effect January 1, 2020, both aim to protect individuals’ personal data and apply to businesses that collect, use or share that data, online or off.
The Future of Privacy Forum (FPF) and DataGuidance have released a new Comparison Guide on the GDPR vs. CCPA, which provides an in-depth analysis on the EU General Data Protection Regulation (GDPR) and the California Consumer Privacy Act of 2018 (CCPA). The Guide highlights the degree of similarity of the GDPR and CCPA on the five key provisions, and a detailed analysis of the similarities and differences.
This Thanksgiving, as families gather around the dinner table and discuss heritage and history, genetic testing is sure to be on the menu. Genetic testing companies are offering Black Friday and Cyber Monday discounts on kits to help you discover your genealogy and are sure to report record sales.