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Personal Data and the Organization: Stewardship and Strategy

Personal data – used lawfully, fairly, and transparently – is central to helping organizations achieve their missions. Today, Boards of Directors, CEOs, policymakers, and others need to understand the wide range of data inputs, the broad scope of risks and benefits, and how privacy and ethics are at the center of an organization’s ability to fulfill […]

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FPF Welcomes Mark MacCarthy as Senior Fellow

The Future of Privacy Forum is pleased to announce the addition of Mark MacCarthy as a Senior Fellow. MacCarthy will work with FPF staff and members on data ethics, artificial intelligence and other issues. “Mark has been a leading champion for responsible data practices and has worked to incorporate thinking from academia and civil society […]

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Smart Communities: A Conversation with Kelsey Finch

One of FPF Policy Counsel Kelsey Finch’s areas of focus is Smart Communities, a field which draws from many of FPF’s issue areas. From her Seattle office, she has the opportunity to do hands-on work with cities in the Pacific Northwest. Last year, she worked with city officials on Seattle’s first Open Data Risk Assessment, […]

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FamilyTreeDNA Agreement with FBI Creates Privacy Risks

Company’s Deal with Law Enforcement Surprises Consumers and Is Out-of-Step with Industry Norms and Best Practices  By John Verdi and Carson Martinez Last week, FamilyTreeDNA announced an agreement with the FBI to allow agents to test DNA samples from crime scenes, develop genetic profiles, and identify familial matches. This agreement marks the first time a […]

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New FPF Study Documents More Than 150 European Companies Participating in the EU-US Data Transfer Mechanism

New FPF Study Documents More Than 150 European Companies Participating in the EU-US Data Transfer Mechanism EU Companies’ Participation Grew by One Third Over the Past Year By Jeremy Greenberg Yesterday, the European Commission published its second annual review of the EU-U.S. Privacy Shield, finding that “the U.S. continues to ensure an adequate level of […]

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Amelia Vance’s Letter to the Editor in the New York Times

FPF Education Director and Policy Counsel Amelia Vance wrote a letter in response to a New York Times story on student privacy laws published earlier this week. She argued that the best way to address concerns over student privacy is to enforce and fully fund the implementation of existing laws, not add even more laws […]

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The HIPAA Privacy Rule 15 Years Later: What’s Next?

On December 4th, FPF, Intel, and Duke in DC hosted “The HIPAA Privacy Rule 15 Years Later: What’s Next?” The event brought together stakeholders across the health data ecosystem to explore the current challenges related to the Health Information Portability and Accountability Act (HIPAA) Privacy Rule. Specifically, the discussion focused on solutions to mitigate restrictions to data sharing in clinical care and research due to administrative burdens, while at the same time maintain the privacy of protected health information (PHI).