FPF Archive

FPF Welcomes Inaugural Elise Berkower Memorial Fellow
The Blog

August 7, 2018 | Melanie E. Bates

FPF Welcomes Inaugural Elise Berkower Memorial Fellow

Earlier this year, FPF launched a new fellowship in memory of Elise Berkower. Elise was a senior privacy executive at global measurement and data analytics company Nielsen for nearly a decade and was a valued, longtime member of the FPF Advisory Board. FPF graciously acknowledges the Berkower Family and the Nielsen Foundation as founding sponsors of the Elise Berkower Memorial Fellowship

Privacy Best Practices for Consumer Genetic Testing Services
The Blog

July 31, 2018 | Carson Martinez

Privacy Best Practices for Consumer Genetic Testing Services

The Best Practices provide a policy framework for the collection, protection, sharing, and use of Genetic Data generated by consumer genetic testing services. These services are commonly offered to consumers for testing and interpretation related to ancestry, health, nutrition, wellness, genetic relatedness, lifestyle, and other purposes.

Future of Privacy Forum and Leading Genetic Testing Companies Announce Best Practices to Protect Privacy of Consumer Genetic Data
The Blog

July 31, 2018 | Melanie E. Bates

Future of Privacy Forum and Leading Genetic Testing Companies Announce Best Practices to Protect Privacy of Consumer Genetic Data

Washington, DC – Today, Future of Privacy Forum, along with leading consumer genetic and personal genomic testing companies 23andMe, Ancestry, Helix, MyHeritage, and Habit, released Privacy Best Practices for Consumer Genetic Testing Services. The Best Practices provide a policy framework for the collection, protection, sharing, and use of Genetic Data generated by consumer genetic testing services. These services are commonly offered to consumers for testing and interpretation related to ancestry, health, nutrition, wellness, genetic relatedness, lifestyle, and other purposes.