Scientific research often requires access to personal information to unlock insights that will improve our world. For those insights to be trusted, however, any personal information must be processed in a lawful and ethical manner that respects privacy and security considerations.
FPF engages stakeholders across academia and industry to produce best practices and ethical review structures that promote responsible research. We elevate and honor responsible research collaborations through our events and awards, including the FPF Award for Research Data Stewardship. Our work is centered around streamlining, encouraging, and promoting responsible scientific research that respects essential privacy and ethical considerations throughout the process. FPF’s Ethical Data Use Committee (EDUC), for example, is an independent ethical review panel that reviews and evaluates the risks and benefits of organizations’ data-sharing projects with academic researchers. FPF works with policymakers to develop legislative protections that support effective, responsible research with strong privacy safeguards, including hosting events that allow policymakers and regulators to engage directly with practitioners from academia, advocacy, and industry.
FPF has an Ethics and Data in Research Working Group. This group receives late-breaking analysis of emerging US legislation affecting research and data, meets to discuss the ethical and technological challenges of conducting research, and collaborates to create best practices to protect privacy, decrease risk, and increase data sharing for research, partnerships, and infrastructure. Learn more and join here.
Navigating Cross-Border Data Transfers in the Asia-Pacific region (APAC): Analyzing Legal Developments from 2021 to 2023
Today, the Future of Privacy Forum (FPF) published an Issue Brief comparatively analyzing cross-border data transfer provisions in new data protection laws in the Asia-Pacific. Titled Navigating Cross-Border Data Transfers in the Asia-Pacific region (APAC): Analyzing Legal Developments from 2021 to 2023, the Issue Brief outlines key developments in cross-border data transfers in the Asia-Pacific […]
Data Sharing for Research Compendium Report and Case Studies
Data Sharing for Research Compendium of Case Studies, Analysis, and Recommendations is a report on corporate-academic partnerships that provides practical recommendations for companies and researchers who want to share data for research. The report, along with its case studies, demonstrates how for many organizations, data-sharing partnerships are transitioning from being considered an experimental business activity […]
Data Sharing for Research: A Compendium of Case Studies, Analysis, and Recommendations
Today, the Future of Privacy Forum (FPF) published a report on corporate-academic partnerships that provides practical recommendations for companies and researchers who want to share data for research. The Report, Data Sharing for Research: A Compendium of Case Studies, Analysis, and Recommendations, demonstrates how, for many organizations, data-sharing partnerships are transitioning from being considered an […]
Optum & The Mayo Clinic Win the 2022 Award for Research Data Stewardship
On Wednesday, May 10, 2023, the Future of Privacy Forum (FPF) honored representatives from Optum and the Mayo Clinic for their outstanding corporate-academic research data-sharing partnership at the 3rd annual Awards for Research Data Stewardship. The awards honor companies and researchers that prioritize privacy-oriented and ethical data sharing for research. In a keynote address, United […]
Optum & The Mayo Clinic Win the 2022 Award for Research Data Stewardship
On Wednesday, May 10, 2023, the Future of Privacy Forum (FPF) honored representatives from Optum and the Mayo Clinic for their outstanding corporate-academic research data-sharing partnership at the 3rd annual Awards for Research Data Stewardship. The awards honor companies and researchers that prioritize privacy-oriented and ethical data sharing for research. In a keynote address, United […]
FPF Announces Recipients of the Third Annual Award for Research Data Stewardship
Today, the Future of Privacy Forum (FPF) — a global non-profit focused on data protection headquartered in Washington, D.C. — announced the winners of the third annual Award for Research Data Stewardship. FPF is a long-standing advocate for privacy-protective data sharing by industry to the research community to advance scientific insights and drive progress in […]
Race Equity, Surveillance in the Post-Roe Era, and Data Protection Frameworks in the Global South are Major Topics During This Year’s Privacy Papers for Policymakers Event
The Future of Privacy Forum (FPF) hosted a Capitol Hill event honoring 2022’s must-read privacy scholarship at the 13th annual Privacy Papers for Policymakers Awards ceremony. This year’s event featured an opening keynote by FTC Commissioner Alvaro Bedoya as well as facilitated discussions with the winning authors: Anita Allen, Anupam Chander, Eunice Park, Pawel Popiel, […]
FPF Releases “The Playbook: Data Sharing for Research” Report and Infographic
Today, the Future of Privacy Forum (FPF) published “The Playbook: Data Sharing for Research,” a report on best practices for instituting research data-sharing programs between corporations and research institutions. FPF also developed a summary of recommendations from the full report. Facilitating data sharing for research purposes between corporate data holders and academia can unlock new scientific […]
The Playbook: Data Sharing for Research Report & Infographic
The Playbook: Data Sharing for Research is an FPF report on the best practices for instituting research data-sharing programs between corporations and research institutions. FPF also developed a summary of recommendations from the full report as well as an infographic on The Value of Responsible Data Sharing for Research. The playbook addresses vital steps for data […]
New Report Promotes Accountability-Based Approach to Data Protection in the APAC Region
In recent years, there has been an uptick in new (comprehensive) data protection laws in the Asia Pacific (APAC). This trend introduces challenges for cross-border compliance, particularly for the industry, legal practitioners, and the community of data protection regulators. As a result of the difficulties, these stakeholders acknowledge that there is a need for greater […]