FPF Archive

FPF Testifies at FTC Data Portability Workshop
The Blog

September 23, 2020 | Pollyanna Sanderson

FPF Testifies at FTC Data Portability Workshop

Yesterday, on September 22, 2020, the Federal Trade Commission held a public workshop, “Data To Go,” examining the benefits and challenges of data portability frameworks for consumers and competition. As a panelist during the first discussion, FPF’s Gabriela Zanfir-Fortuna discussed: how data portability operates in different commercial sectors; lessons learned from the GDPR and other […]

The First National Model Student Data Privacy Agreement Launches
The Blog

September 18, 2020 | Tyler Park

The First National Model Student Data Privacy Agreement Launches

By Tyler Park Protections for student data privacy took an important step forward this summer when the Student Data Privacy Consortium (SDPC) released the first model National Data Privacy Agreement (NDPA) for school districts to use with their technology service providers. Ever since education technology (edtech) emerged as a key tool in classrooms, both schools […]

The Blog

September 16, 2020 | FPF Staff

Data Protection Expert Agnes Bundy Scanlan and Fundraising and Philanthropy Leader Elaine Laughlin Join Board of Directors

FPF is pleased to announce two new Directors, Agnes Bundy Scanlan and Elaine Laughlin. Agnes Bundy Scanlan is a global leader in the governance, law, regulatory and compliance risk, and data information security fields. Agnes is also an experienced legal counsel and advisor to industry and government. She has built a sterling reputation as being proactive, […]

Five Top of Mind Data Protection Recommendations for Brain-Computer Interfaces
The Blog

September 15, 2020 | Katelyn Ringrose

Five Top of Mind Data Protection Recommendations for Brain-Computer Interfaces

By Jeremy Greenberg, [email protected] and Katelyn Ringrose [email protected]    Key FPF-curated background resources – policy & regulatory documents, academic papers, and technical analyses regarding brain-computer interfaces are available here.  Recently, Elon Musk livestreamed an update for Neuralink—his startup centered around creating brain-computer interfaces (BCIs). BCIs are an umbrella term for devices that detect, amplify, and […]

FPF Submits Comments Regarding Data Protection & COVID-19 Ahead of National Committee on Vital and Health Statistics Hearing
The Blog

September 10, 2020 | Pollyanna Sanderson

FPF Submits Comments Regarding Data Protection & COVID-19 Ahead of National Committee on Vital and Health Statistics Hearing

Yesterday, FPF submitted comments to the National Committee on Vital and Health Statistics (NCVHS) ahead of a Virtual Hearing of the Subcommittee on Privacy, Confidentiality, and Security on September 14, 2020.  The hearing will explore considerations for data collection and use during a public health emergency, in light of the deployment of new technologies for […]

FPF Presents @ RightsCon 2020:  “Frontiers in health data privacy: navigating blurred expectations across the patient-consumer spectrum”
The Blog

September 9, 2020 | FPF Staff

FPF Presents @ RightsCon 2020: “Frontiers in health data privacy: navigating blurred expectations across the patient-consumer spectrum”

The patient-consumer spectrum is a growing concept in which healthcare is rapidly transitioning from a periodic activity in fixed, traditional health care settings to an around-the-clock activity that involves the generation, use, and integration of data reflecting many aspects of individuals’ lives and behaviors. Accompanying this spectrum are blurred distinctions between traditional versus consumer-generated health […]