FPF Archive

The Blog

September 16, 2020 | FPF Staff

Data Protection Expert Agnes Bundy Scanlan and Fundraising and Philanthropy Leader Elaine Laughlin Join Board of Directors

FPF is pleased to announce two new Directors, Agnes Bundy Scanlan and Elaine Laughlin. Agnes Bundy Scanlan is a global leader in the governance, law, regulatory and compliance risk, and data information security fields. Agnes is also an experienced legal counsel and advisor to industry and government. She has built a sterling reputation as being proactive, […]

Five Top of Mind Data Protection Recommendations for Brain-Computer Interfaces
The Blog

September 15, 2020 | Katelyn Ringrose

Five Top of Mind Data Protection Recommendations for Brain-Computer Interfaces

By Jeremy Greenberg, [email protected] and Katelyn Ringrose [email protected]    Key FPF-curated background resources – policy & regulatory documents, academic papers, and technical analyses regarding brain-computer interfaces are available here.  Recently, Elon Musk livestreamed an update for Neuralink—his startup centered around creating brain-computer interfaces (BCIs). BCIs are an umbrella term for devices that detect, amplify, and […]

FPF Submits Comments Regarding Data Protection & COVID-19 Ahead of National Committee on Vital and Health Statistics Hearing
The Blog

September 10, 2020 | Pollyanna Sanderson

FPF Submits Comments Regarding Data Protection & COVID-19 Ahead of National Committee on Vital and Health Statistics Hearing

Yesterday, FPF submitted comments to the National Committee on Vital and Health Statistics (NCVHS) ahead of a Virtual Hearing of the Subcommittee on Privacy, Confidentiality, and Security on September 14, 2020.  The hearing will explore considerations for data collection and use during a public health emergency, in light of the deployment of new technologies for […]

FPF Presents @ RightsCon 2020:  “Frontiers in health data privacy: navigating blurred expectations across the patient-consumer spectrum”
The Blog

September 9, 2020 | FPF Staff

FPF Presents @ RightsCon 2020: “Frontiers in health data privacy: navigating blurred expectations across the patient-consumer spectrum”

The patient-consumer spectrum is a growing concept in which healthcare is rapidly transitioning from a periodic activity in fixed, traditional health care settings to an around-the-clock activity that involves the generation, use, and integration of data reflecting many aspects of individuals’ lives and behaviors. Accompanying this spectrum are blurred distinctions between traditional versus consumer-generated health […]

Call for Position Statements on Responsible Uses of Technology and Health Data During Times of Crisis
The Blog

September 3, 2020 | Christy Harris

Call for Position Statements on Responsible Uses of Technology and Health Data During Times of Crisis

Event Overview The Future of Privacy Forum, in collaboration with the National Science Foundation, Duke Sanford School of Public Policy, SFI ADAPT Research Centre, Dublin City University, and Intel Corporation presents Privacy & Pandemics: Responsible Uses of Technology and Health Data During Times of Crisis — An International Tech and Data Conference, including a two day […]

California’s SB 980 Would Codify Strong Protections for Genetic Data
The Blog

September 3, 2020 | John Verdi

California’s SB 980 Would Codify Strong Protections for Genetic Data

Author: John Verdi (Vice President of Policy) This week, SB 980 (the “Genetic Information Privacy Act”) passed the California State Assembly and State Senate, with near unanimous support (54-10 and 39-0). If signed by the Governor before the Sept. 30 deadline, the law would become the first comprehensive genetic privacy law in the United States, […]

How the Student Privacy Pledge Bolsters Legal Requirements and Supports Better Privacy in Education
The Blog

September 2, 2020 | FPF Staff

How the Student Privacy Pledge Bolsters Legal Requirements and Supports Better Privacy in Education

The Student Privacy Pledge is a public and legally enforceable statement by edtech companies to safeguard student privacy, built around a dozen privacy commitments regarding the collection, maintenance, use, and sharing of student personal information. Since it was introduced in 2014 by the Future of Privacy Forum (FPF) and the Software and Information Industry Association, […]