FPF Archive

FPF Welcomes Inaugural Elise Berkower Memorial Fellow
The Blog

August 7, 2018 | Melanie E. Bates

FPF Welcomes Inaugural Elise Berkower Memorial Fellow

Earlier this year, FPF launched a new fellowship in memory of Elise Berkower. Elise was a senior privacy executive at global measurement and data analytics company Nielsen for nearly a decade and was a valued, longtime member of the FPF Advisory Board. FPF graciously acknowledges the Berkower Family and the Nielsen Foundation as founding sponsors of the Elise Berkower Memorial Fellowship

Privacy Best Practices for Consumer Genetic Testing Services
The Blog

July 31, 2018 | Carson Martinez

Privacy Best Practices for Consumer Genetic Testing Services

The Best Practices provide a policy framework for the collection, protection, sharing, and use of Genetic Data generated by consumer genetic testing services. These services are commonly offered to consumers for testing and interpretation related to ancestry, health, nutrition, wellness, genetic relatedness, lifestyle, and other purposes.

Future of Privacy Forum and Leading Genetic Testing Companies Announce Best Practices to Protect Privacy of Consumer Genetic Data
The Blog

July 31, 2018 | Melanie E. Bates

Future of Privacy Forum and Leading Genetic Testing Companies Announce Best Practices to Protect Privacy of Consumer Genetic Data

Washington, DC – Today, Future of Privacy Forum, along with leading consumer genetic and personal genomic testing companies 23andMe, Ancestry, Helix, MyHeritage, and Habit, released Privacy Best Practices for Consumer Genetic Testing Services. The Best Practices provide a policy framework for the collection, protection, sharing, and use of Genetic Data generated by consumer genetic testing services. These services are commonly offered to consumers for testing and interpretation related to ancestry, health, nutrition, wellness, genetic relatedness, lifestyle, and other purposes.

Policy Brief: European Commission’s Strategy for AI, explained
The Blog

July 19, 2018 | Gabriela Zanfir-Fortuna

Policy Brief: European Commission’s Strategy for AI, explained

The European Commission published a Communication on “Artificial Intelligence for Europe” on April 24th 2018. It highlights the transformative nature of AI technology for the world and it calls for the EU to lead the way in the approach of developing AI on a fundamental rights framework. AI for good and for all is the motto the Commission proposes. The Communication could be summed up as announcing concrete funding for research projects, clear social goals and more thinking about everything else.

FPF Publishes Report Supporting Stakeholder Engagement and Communications for Researchers and Practitioners Working to Advance Administrative Data Research
The Blog

July 16, 2018 | Kelsey Finch

FPF Publishes Report Supporting Stakeholder Engagement and Communications for Researchers and Practitioners Working to Advance Administrative Data Research

The ADRF Network is an evolving grassroots effort among researchers and organizations who are seeking to collaborate around improving access to and promoting the ethical use of administrative data in social science research. As supporters of evidence-based policymaking and research, FPF has been an integral part of the Network since its launch and has chaired the network’s Data Privacy and Security Working Group since November 2017.