Posts by Carson Martinez

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FPF Report: IoT Devices Should Deal with Privacy Impacts for People with Disabilities

FPF has released The Internet of Things (IoT) and People with Disabilities: Exploring the Benefits, Challenges, and Privacy Tensions. This paper explores the nuances of privacy considerations for people with disabilities using IoT services and provides recommendations to address privacy considerations, which can include transparency, individual control, respect for context, the need for focused collection […]

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FPF, EFPIA, and CIPL Workshop Report Now Available: “Can GDPR Work for Health Scientific Research?”

On October 22, 2018, the Future of Privacy Forum (FPF), the European Federation of Pharmaceutical Industries and Associations (EFPIA), and the Centre for Information Policy Leadership (CIPL) hosted a workshop in Brussels, “Can GDPR Work for Health Scientific Research?” to discuss the processing of personal data for scientific research purposes under the European Union’s General Data Protection Regulation (GDPR).

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The HIPAA Privacy Rule 15 Years Later: What’s Next?

On December 4th, FPF, Intel, and Duke in DC hosted “The HIPAA Privacy Rule 15 Years Later: What’s Next?” The event brought together stakeholders across the health data ecosystem to explore the current challenges related to the Health Information Portability and Accountability Act (HIPAA) Privacy Rule. Specifically, the discussion focused on solutions to mitigate restrictions to data sharing in clinical care and research due to administrative burdens, while at the same time maintain the privacy of protected health information (PHI).