FPF AWARD FOR RESEARCH DATA STEWARDSHIP

FREE Virtual Online-Only Event May 10, 2023 1:00-2:30 PM EDT

Overview

Established by FPF in 2020, the Award for Research Data Stewardship recognizes a research partnership between a company and an academic institution in which a company shares data it holds in a privacy-protective manner with a researcher or research team for scholarly publication.

Join FPF and representatives from the 2022 award-winning organizations for an engaging discussion about their collaborations and the best practices that make them effective.

Register for the live virtual event on Wednesday, May 10, 2023, 1:00 – 2:30 EDT PM

Featuring remarks from:

  • Lori Trahan, U.S. Representative, Massachusetts’s Third Congressional District
  • Jules Polonetsky, Chief Executive Officer, Future of Privacy Forum

The 2022 FPF Award for Research Data Stewardship Winners:

Optum and Mayo Clinic, “Predicting the Risk of Severe Hypoglycemic and Hyperglycemic Events in Adults with Diabetes” A collaboration between Mayo Clinic researchers and Optum addressed critical gaps in diabetes management by examining the epidemiology of severe hypoglycemia and hyperglycemia in the U.S. through risk prediction models using real-world data contained within Optum to emulate clinical trials of interventions to improve glycemic control and reduce risks of severe hypoglycemia and hyperglycemia.

Honorable Mention: the University of Florida’s Transportation Institute with Gravy Analytics, “Using Location Analytics to Enhance Natural Disaster Emergency Response Planning and Management.” Utilizing secure human mobility data, the collaboration between the research team from the University of Florida’s Transportation Institute (UFTI) and Gravy Analytics examined the movement of residents before, during, and after the 2019 Kincade Fire in Sonoma County, CA.

The FPF Award for Research Data Stewardship is supported by the Alfred P. Sloan Foundation, a not-for-profit grantmaking institution whose mission is to enhance the welfare of all through the advancement of scientific knowledge.

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Agenda

Time

Item

Speakers

1:00 pm ET

Introductions & Opening remarks

Shea Swauger, Future of Privacy Forum

1:05 pm ET

Congressional Keynote Speaker

Congresswoman Lori Trahan

1:20 pm ET

Presentation & Discussion by Award Winners: ‘Predicting the Risk of Severe Hypoglycemic and Hyperglycemic Events in Adults with Diabetes’

Dr. Rozalina McCoy, Mayo Clinic

Mehwish Qasim, PhD, MPH, Optum

 

 

 

1:50 pm ET

Audience Q&A of Award Winners

Dr. Rozalina McCoy, Mayo Clinic

Mehwish Qasim, PhD, MPH, Optum

 

2:00 pm –
2:05 pm ET

Closing Remarks

Jules Polonetsky, Future of Privacy Forum

Speakers

Dr. Rozalina McCoy

Associate Professor of Medicine and Vice Chair for Research, Mayo Clinic

Dr. McCoy is Associate Professor of Medicine and Vice Chair for Research in the Mayo Clinic Division of Community Internal Medicine, Geriatrics, and Palliative Care in Rochester, Minnesota, where practices as a general internist and endocrinologist and serves as medical director of the Mayo Clinic Ambulance Community Paramedic Service. Dr. McCoy is a NIH- and PCORI-funded clinician scientist whose work leverages real-world data to improve the quality, equity, and accessibility of diabetes care. She received her undergraduate degree at Harvard, medical degree at Johns Hopkins, completed her medical training in internal medicine and endocrinology at Mayo Clinic, and has been on faculty at Mayo Clinic since 2015.

Jules Polonetsky

Chief Executive Officer, FPF

Jules has served for 15 years as CEO of the Future of Privacy Forum, a global non-profit organization that serves as a catalyst for privacy leadership and scholarship, advancing principled data practices in support of emerging technologies.

Mehwish Qasim

Senior Director, Academic & Advocacy Partnerships, Optum

Dr. Mehwish Qasim is a distinguished leader on the Academic and Advocacy Partnerships Team with Optum, part of UnitedHealth Group. She holds a Ph.D. in Health Services Research and has spent the last decade honing her skills at UnitedHealth Group, where she’s held a range of roles in research and analysis and driving strategic programs. For the last 5 years, she has led various academic partnerships, bringing a wealth of knowledge and deep expertise to these collaborations. Her work has been invaluable in shaping policies and programs and driving innovation in the field. She’s also a new, third-time mom, dialing in from her maternity leave, and in two weeks, will add Harvard graduate to her list of impressive accomplishments.

Shea Swauger

Senior Researcher for Data Sharing and Ethics, FPF

Shea Swauger (he/him) is Senior Researcher for Data Sharing and Ethics at the Future of Privacy Forum. Previously, Shea was head of Research Services at the Auraria Library and Director of the Data to Policy Project at the University of Colorado Denver. Before that, he was a Data Management Librarian at Colorado State University. He holds a BA in Philosophy, a Masters of Library Science, and is currently working towards a PhD. in Education and Critical Studies. Shea founded the National Data Integrity Conference, co-founded the Privacy and Ethics in Technology Working Group, and has written numerous publications on privacy, ethics, data, and technology.

Lori Trahan

Congresswoman , Massachusetts’ Third Congressional District

Congresswoman Lori Trahan proudly represents Massachusetts’ Third Congressional District. Before running for Congress in 2018, she worked as a congressional staffer for nearly a decade before leaving for the private sector in the mid-2000s where she held a number of positions, including an executive role at an AdTech startup in Cambridge. Since taking office in 2019, Congresswoman Trahan has established herself as a leading lawmaker on technology policy issues, including transparency requirements, child protections, and privacy rights. As a member of the House Energy and Commerce Committee’s Innovation, Data, and Commerce Subcommittee, she has led the introduction of a number of technology-focused bills, including the Digital Services Oversight and Safety Act, the TL;DR Act, and the DELETE Act. In addition to her legislative work, she has successfully pressured Meta to suspend its development of an Instagram for Kids, pressed Elon Musk on Twitter’s new paid API access for researchers, and pushed data brokers and messaging services to share information on how women’s reproductive and location data is collected and used following the Supreme Court’s decision last year to overturn Roe v. Wade.

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2023 research data stewardship info sheet 2.20.23