Research often requires using sensitive data to answer important questions. The ethical collection and analysis of personal information can be challenging to do while still protecting the privacy of the implicated individuals, honoring informed consent, and complying with other legal obligations. The technology, policies, and ethical considerations for researchers are constantly shifting, sometimes making it difficult to keep up. That’s why FPF engages stakeholders across academia and industry to produce recommendations, best practices, and ethical review structures that promote responsible research. Our work is centered around streamlining, encouraging, and promoting responsible research that respects essential privacy and ethical considerations throughout the research lifecycle. FPF works with policymakers to develop legislative protections that support effective, responsible research with strong privacy safeguards, including hosting events that allow policymakers and regulators to engage directly with practitioners from academia, advocacy, and industry.
FPF also has an Ethics and Data in Research Working Group. This group receives late-breaking analysis of emerging legislation affecting research and data, meets to discuss the ethical and technological challenges of conducting research, and collaborates to create best practices to protect privacy, decrease risk, and increase data sharing for research, partnerships, and infrastructure. Learn more and join here.
Manipulative UX Design & the Role of Regulation: Event Highlights
On March 24, the FPF hosted “Dark Patterns:” Manipulative UX Design and the Role of Regulation. So-called “dark patterns” are user interface design choices that benefit an online service by coercing, manipulative, or deceiving users into making unintended or potentially harmful decisions. The event provided a critical examination of the ways in which manipulative interfaces can […]
Acting FTC Chairwoman Slaughter Highlights Priorities in Privacy Papers for Policymakers Event Keynote
The Future of Privacy Forum’s 11th-annual Privacy Papers for Policymakers event – the first event in the series to take place virtually – was a success! This year’s event featured a keynote speech by Acting FTC Chairwoman Rebecca Kelly Slaughter and facilitated discussions between the winning authors – Amy B. Cyphert, Clarisse Girot, Brittan Heller, Tiffany C. […]
FPF Seeks Nominations for 2021 Research Data Stewardship Award
The Call for Nominations for the 2021 FPF Award for Research Data Stewardship is now open. You can find the nominations forms here. We ask that nominations be submitted by Monday, March 1, 2021. The FPF Award for Research Data Stewardship recognizes excellence in the privacy-protective stewardship of corporate data that is shared with academic researchers. […]
FPF Health and AI & Ethics Policy Counsels Present a Scientific Position at ICML 2020 and at 2020 CCSQ World Usability Day
On November 12, 2020, FPF Policy Counsels Drs. Rachele Hendricks-Sturrup and Sara Jordan presented privacy-by-design alongside human-centered design concepts during the 2020 CCSQ World Usability Day virtual conference. This presentation followed Drs. Hendricks-Sturrup’s and Jordan’s July 2020 scientific position paper presented at the International Conference on Machine Learning (ICML) 2020, entitled “Patient- Reported Outcomes: A Privacy-Centric and Federated Approach […]
2020 Brussels Privacy Symposium
The 2020 Brussels Privacy Symposium is the fourth-annual academic program jointly presented by the Brussels Privacy Hub of Vrije Universiteit Brussel (VUB) and the Future of Privacy Forum (FPF) and is a global convening of practical, applicable, substantive privacy research and scholarship. On December 2, 2020, the fourth iteration of the Brussels Privacy Symposium, “Research and the Protection of […]
FPF Best Practices and Contract Guidelines Help Companies Share Data with Academic Researchers
Does your company have data that could help academic researchers unravel the mysteries of human health, behavior, education, or other areas of study? Data held by private organizations has the potential to lead to scientific insights that can benefit society and improve lives – if it can be accessed in a responsible manner that respects […]
A Look Back at the Role of Law and the Right To Privacy in LGBTQ+ History
By Katelyn Ringrose, Christopher Wolf Diversity Law Fellow at the Future of Privacy Forum, and Christopher Wood, Executive Director of LGBT Tech, with thanks to Connor Colson, FPF Policy Intern. LGBTQ+ rights are, and have always been, linked with privacy. Over the years, privacy-invasive laws, practices, and norms have been used to oppress LGBTQ+ individuals […]
Dr. Lauren Gardner, Creator of Johns Hopkins University’s COVID-19 Dashboard, and UC Berkeley Data Analytics Researcher Dr. Katherine Yelick to Keynote FPF Conference on Privacy & Pandemics
Workshop Explores the Value and Limits of Data and Technology in the Context of the COVID-19 Pandemic Today, the Future of Privacy Forum announced a pair of distinguished professors and researchers will be the keynote speakers for a two-day virtual workshop exploring the value and limits of data and technology in the context of a […]
Event Recap: Using Corporate Data for Research – Lessons from an Award-Winning Project
Last week, FPF hosted a virtual event honoring the winners of the first-ever FPF Award for Research Data Stewardship: University of California, Irvine Professor of Cognitive Sciences Mark Steyvers and Lumos Labs, represented by General Manager Bob Schafer. In addition to the awardees, the event featured Daniel L. Goroff, Vice President and Program Director at […]
FPF Submits Comments Regarding Data Protection & COVID-19 Ahead of National Committee on Vital and Health Statistics Hearing
Yesterday, FPF submitted comments to the National Committee on Vital and Health Statistics (NCVHS) ahead of a Virtual Hearing of the Subcommittee on Privacy, Confidentiality, and Security on September 14, 2020. The hearing will explore considerations for data collection and use during a public health emergency, in light of the deployment of new technologies for […]