Privacy Protective Research: Facilitating Ethically Responsible Access to Administrative Data Paper
Jules Polonetsky, CEO, Future of Privacy Forum, Omer Tene, Senior Fellow, Future of Privacy Forum, and Daniel Goroff, Vice President and Program Director, Alfred P. Sloan Foundation authored a paper titled Privacy Protective Research: Facilitating Ethically Responsible Access to Administrative Data. The authors explain:
This paper provides strategies for organizations to minimize risks of re-identification and privacy violations for individual data subjects. In addition, it suggests privacy and ethical concerns can be most effectively managed by supporting the development of administrative data centers. These institutions will serve as centers of expertise for de-identification, certify researchers, provide state-of-the-art data security, organize ethical review boards and support best practices for cleansing and managing data sets.