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[…] violation of Google’s Gmail privacy policy and the Safe Harbor agreement. T he FTC als o argued that the privacy controls Google implemented did not work as promised. FTC alleged that Google had engaged in an unfair or deceptive trade practice, in violation of section 5(a) of the Federal Trade Commission Act. The settlement […]

1 PRESERVING IDENTITIES: PROTECTING PERSONAL IDENTIFYING INFORMATION THROUGH ENHANCED PRIVACY POLICIES AND LAWS by Robert Sprague* and Corey Ciocchetti** “The common law has always recognized a man’s house as his castle . . . . Shall the courts thus close the front entrance to constituted authority, and open wide the back door to idle or […]

Word Count: ____ Big Da ta Sustainability An Environmental Management Systems Analogy Dennis D. Hirsch * Jonathan H. King ** Introduction It is commonly proclaimed that ” big data is the new oil.” 1 This is true in the sense that data, like oil, constitutes a critical and therefore valuable resource on which our society […]

The Deidentification Dilemma:  A Legislative and Contractual Proposal  Robert Gellman 1  Version 2.4  July 12, 2010      Abstract     Deidentification is one method for protecting priva cy while permitting other uses  of personal information.  However, deidentified dat a is often still capable of being  reidentified.  The main purpose of this article is  to offer a legislative-based  contractual solution for the sharing of deidentifie d personal information while  providing protections for privacy.  The legislative  framework allows a data  discloser and a data recipient to enter into a volu ntary contract that defines  responsibilities and offers remedies to aggrieved i ndividuals.     Introduction       The goal of protecting the privacy interests of in dividuals often conflicts with ever- increasing demands for use of personal data to achi eve potentially beneficial objectives in public  health, law enforcement, national security, anti-te rrorism, fraud prevention, and research in  different fields of study.  Conflicts over privacy  can be reduced, moderated, and balanced in  various ways.       Deidentification – the removal of identifiers from  personal information used or disclosed  for purposes unrelated to the purpose for which the  information was originally obtained – is one  method for protecting privacy while permitting othe r uses of personal information.  However,  deidentification does not always make it impossible  to reidentify individuals.  Reidentification is  the linkage of deidentified personal information wi th an overt identifier belonging or assigned to  any living or dead individual.       It is a premise of this article that statistical,  encryption, or other mathematical approaches  to deidentification that protect privacy will not p rovide solutions that will address every type of  […]

Radio Frequency Identification in Hospitals: Balancing Hospital Efficiency and Patient Privacy Christopher A. Suarez Yale Law School, USA This paper will appear in P ERSONAL DATA PRIVACY AND PROTECTION IN A SURVEILLANCE ERA : TECHNOLOGIES AND PRACTICES , edited by Christina Akrivopoulou and Athanasios Psygkas, Copyright 2010, IGI Global. Posted by permission of the publisher. […]

!1!Beyond’IRBs:’Ethical’Guidelines’for’Data’Research”’Omer%Tene%and%Jules%Polonetsky%*%!!The! ethical! framework! applying! to! human! subject! research! in! the! biomedical! and!behavioral! research! fields! dates! back! to! the! Belmont! Report.1!Drafted! in! 1976! and!adopted!by!the!United!States!government!in1991!as!the!Common!Rule,2!the!Belmont!principles! were! geared! towards!a! paradigmatic! controlled! scientific! experiment!with!a! limited! population!of! human! subjects! interacting! directly! with!researchers!and!manifesting!their! informed! consent.! These! days,! researchers! in! academic!institutions! as! well! as! private! sector! businesses! not! subject! to! the! Common! […]

!1!Beyond’IRBs:’Ethical’Guidelines’for’Data’Research”’Omer%Tene%and%Jules%Polonetsky%*%!!The! ethical! framework! applying! to! human! subject! research! in! the! biomedical! and!behavioral! research! fields! dates! back! to! the! Belmont! Report.1!Drafted! in! 1976! and!adopted!by!the!United!States!government!in1991!as!the!Common!Rule,2!the!Belmont!principles! were! geared! towards!a! paradigmatic! controlled! scientific! experiment!with!a! limited! population!of! human! subjects! interacting! directly! with!researchers!and!manifesting!their! informed! consent.! These! days,! researchers! in! academic!institutions! as! well! as! private! sector! businesses! not! subject! to! the! Common! […]

Selected Issues Concerning the Ethical Use of Big Data Health Analytics I. Introduction a. Big Data Generally T he terms Big Data and Big Data analytics originally derive from the terms artificial intelligence, business intelligence , and business analytics ; terms used in the 1950s, 1990s, and 2000s, respectively . 1 Although some argue that […]

Privacy: The New Generations Omer Tene* Privacy law in general, and informational privacy in particular, have always been closely linked to techno- logical development. In their seminal 1890 article ‘The Right to Privacy’, Warren and Brandeis lament the ‘[i]nstantaneous photographs and newspaper enterprise [that] have invaded the sacred precincts of private and domestic life; and […]

Emerging Ethics Norms in Social Media Research 1 Katie Shilton College of Information Studies University of Maryland, College Park Defining ethical practices for research using data from digital and social media communities is an ongoing challenge. This paper argues that we should learn from practice: that researchers working with open and online datasets are converging […]