Research & Ethics

Tejaswini Mishra, PhD, Michael Snyder, PhD, Erika Mahealani Hunting, Alessandra Celli, Arshdeep Chauhan, and Jessi Wanyi Li from the Stanford University School of Medicine’s Department of Genetics, and Empatica Inc. are the recipients of the second-annual FPF Award for Research Data Stewardship. The collaboration between the research team from Stanford Medicine and Empatica, a medical […]

Google has been recognized with the second-annual FPF Award for Research Data Stewardship for its work to produce, aggregate, anonymize, and share data on community movement during the COVID-19 pandemic. Google’s Community Mobility Reports go through a robust anonymization process that employs differential privacy techniques to ensure that personal data, including an individual’s location, movement, […]

FPF is collaborating with a team of researchers to build a searchable database of privacy policies and other privacy-related documents. The PrivaSeer project, led by researchers from Penn State and the University of Michigan, has received a $1.2 million grant from the National Science Foundation (NSF) to ease the process of collecting and utilizing privacy […]

FPF has launched an independent ethical review committee to provide oversight for research projects that rely upon sharing of corporate data with researchers. Whether researchers are studying the impact of platforms on society, supporting evidence based policymaking, or understanding issues from COVID to climate change, personal data held by companies is increasingly essential to advancing scientific knowledge.

Scientific research is often dependent on access to personal information, whether collected directly from individuals or collected for a real-world use and then accessed for research. For research to be trusted, processing of personal information must be lawful, ethical and subject to privacy and security protections. Supporting responsible research is a priority for FPF: Data […]

The Call for Nominations for the 2021 FPF Award for Research Data Stewardship is now open. You can find the nominations forms here. We ask that nominations be submitted by Monday, March 1, 2021. The FPF Award for Research Data Stewardship recognizes excellence in the privacy-protective stewardship of corporate data that is shared with academic researchers. […]

On November 12, 2020, FPF Policy Counsels Drs. Rachele Hendricks-Sturrup and Sara Jordan presented privacy-by-design alongside human-centered design concepts during the 2020 CCSQ World Usability Day virtual conference. This presentation followed Drs. Hendricks-Sturrup’s and Jordan’s July 2020 scientific position paper presented at the International Conference on Machine Learning (ICML) 2020, entitled “Patient- Reported Outcomes: A Privacy-Centric and Federated Approach […]

The 2020 Brussels Privacy Symposium is the fourth-annual academic program jointly presented by the Brussels Privacy Hub of Vrije Universiteit Brussel (VUB) and the Future of Privacy Forum (FPF) and is a global convening of practical, applicable, substantive privacy research and scholarship. On December 2, 2020, the fourth iteration of the Brussels Privacy Symposium, “Research and the Protection of […]

The Future of Privacy Forum (FPF) and 23 other education, healthcare, disability rights, data protection, and civil liberties organizations today released Education During a Pandemic: Principles for Student Data Privacy and Equity (available here). The Principles offer 10 guiding recommendations for schools as they rely on new technologies and data to facilitate remote, in-person, or […]

Authors: John Verdi (Vice President of Policy) and Katelyn Ringrose (Christopher Wolf Diversity Law Fellow)  In July 2018, the Future of Privacy Forum released Privacy Best Practices for Consumer Genetic Testing Services. FPF developed the Best Practices following consultation with technical experts, regulators, leading consumer genetic and personal genomic testing companies, and civil society. The […]