FPF Releases “The Playbook: Data Sharing for Research” Report and Infographic

Today, the Future of Privacy Forum (FPF) published “The Playbook: Data Sharing for Research,” a report on best practices for instituting research data-sharing programs between corporations and research institutions. FPF also developed a summary of recommendations from the full report.

Facilitating data sharing for research purposes between corporate data holders and academia can unlock new scientific insights and drive progress in public health, education, social science, and a myriad of other fields for the betterment of the broader society. Academic researchers use this data to consider consumer, commercial, and scientific questions at a scale they cannot reach using conventional research data-gathering techniques alone. This data also helped researchers answer questions on topics ranging from bias in targeted advertising and the influence of misinformation on election outcomes to early diagnosis of diseases through data collected by fitness and health apps.

The playbook addresses vital steps for data management, sharing, and program execution between companies and researchers. Creating a data-sharing ecosystem that positively advances scientific research requires a better understanding of the established risks, opportunities to address challenges, and the diverse stakeholders involved in data-sharing decisions. This report aims to encourage safe, responsible data-sharing between industries and researchers.

“Corporate data sharing connects companies with research institutions, by extension increasing the quantity and quality of research for social good,” said Shea Swauger, Senior Researcher for Data Sharing and Ethics. “This Playbook showcases the importance, and advantages, of having appropriate protocols in place to create safe and simple data sharing processes.”

In addition to the Playbook, FPF created a companion infographic summarizing the benefits, challenges, and opportunities of data sharing for research outlined in the larger report.

As a longtime advocate for facilitating the privacy-protective sharing of data by industry to the research community, FPF is proud to have created this set of best practices for researchers, institutions, policymakers, and data-holding companies. In addition to the Playbook, the Future of Privacy Forum has also opened nominations for its annual Award for Research Data Stewardship.

“Our goal with these initiatives is to celebrate the successful research partnerships transforming how corporations and researchers interact with each other,” Swauger said. “Hopefully, we can continue to engage more audiences and encourage others to model their own programs with solid privacy safeguards.”

Shea Swauger, Senior Researcher for Data Sharing and Ethics, Future of privacy Forum

Established by FPF in 2020 with support from The Alfred P. Sloan Foundation, the Award for Research Data Stewardship recognizes excellence in the privacy-protective stewardship of corporate data shared with academic researchers. The call for nominations is open and closes on Tuesday, January 17, 2023. To submit a nomination, visit the FPF site.

FPF has also launched a newly formed Ethics and Data in Research Working Group; this group receives late-breaking analyses of emerging US legislation affecting research and data, meets to discuss the ethical and technological challenges of conducting research, and collaborates to create best practices to protect privacy, decrease risk, and increase data sharing for research, partnerships, and infrastructure. Learn more and join here.