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Privacy and Pandemics: A Thoughtful Discussion

March 27, 2020 | Katelyn Ringrose

Privacy and Pandemics: A Thoughtful Discussion

As the COVID-19 virus spreads, governments, researchers, and healthcare institutions are seeking to obtain and deploy consumer data to track the spread of the virus, deliver emergency supplies, target travel restrictions and quarantines, and develop vaccines and cures. But can data collected from phones, credit cards, and other sources be used in this emergency without […]

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A Closer Look at Location Data: Privacy and Pandemics

March 25, 2020 | Stacey Gray

A Closer Look at Location Data: Privacy and Pandemics

In this series, Privacy and Pandemics, the Future of Privacy Forum explores the challenges posed by the COVID-19 crisis to existing ethical, privacy, and data protection frameworks, and will seek to provide information and guidance to companies and researchers interested in responsible data sharing to support public health response. Future posts will examine pandemic-tracking mobile […]

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Navigating Privacy in a Data-Driven World

March 19, 2020 | Marianne Varkiani

Navigating Privacy in a Data-Driven World

“What does it mean for people actually working with data, people monitoring data, people analyzing data, people selling data? What does it mean to actually be thinking about privacy as a human right?” Future of Privacy Forum CEO Jules Polonetsky posed these questions at the beginning of his keynote, Navigating Privacy in a Data-Driven World: […]

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EU DPAs Issue Green and Red Lights for Processing Health Data During the COVID-19 Epidemic

March 10, 2020 | Dr. Gabriela Zanfir-Fortuna

EU DPAs Issue Green and Red Lights for Processing Health Data During the COVID-19 Epidemic

As Europe is grappling with an exponential increase in COVID-19 cases, some European Data Protection Authorities issued public interest guidance on the limits of collecting, sharing and using personal data relating to health in these exceptional circumstances. Particular areas of concern are related to the breadth of measures that employers can legally take to monitor […]

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The Future of Privacy Technology

March 6, 2020 | Marianne Varkiani

The Future of Privacy Technology

Today, FPF is making available a report co-authored by CEO Jules Polonetsky and Policy Fellow Jeremy Greenberg that identifies future directions and requirements of privacy technology from the industry perspective. With support by the National Science Foundation under Grant No. 1939288, a survey was designed and administered to industry privacy leaders to provide input on […]

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A Closer Look at Genetic Data Privacy and Nondiscrimination in 2020

March 2, 2020 | Dr. Rachele Hendricks-Sturrup

A Closer Look at Genetic Data Privacy and Nondiscrimination in 2020

Florida lawmakers recently introduced HB 1189/SB 1564 – a bill that would prohibit life and long-term care insurers from basing coverage and rates or denying coverage based on individuals’ genetic information. Washington State lawmakers are considering a bill, HB 2485, that would prohibit life insurance companies and others from obtaining individuals’ genetic information from direct-to-consumer […]

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Close to the Finish Line: Observations on the Washington Privacy Act

February 25, 2020 | Stacey Gray

Close to the Finish Line: Observations on the Washington Privacy Act

By: Stacey Gray and Gabriela Zanfir-Fortuna * We wrote last week that Washington State seems poised to become the second US state to pass a major comprehensive privacy bill. The proposed Washington Privacy Act (WPA) would be mostly aligned with the EU’s GDPR, the global gold standard for data protection (although there are still some […]

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EDPB Draft Guidelines on Connected Cars Focus on Data Protection by Design and Push for Consent

February 19, 2020 | FPF Staff

EDPB Draft Guidelines on Connected Cars Focus on Data Protection by Design and Push for Consent

By Gabriela Zanfir-Fortuna and Chelsey Colbert The European Data Protection Board recently published its draft Guidelines 1/2020 on processing personal data in the context of connected vehicles and mobility related applications, which are open for feedback until March 20. The EDPB writes that the main challenge for complying with European data protection and privacy laws […]

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The 10th Annual Privacy Papers for Policymakers Event

February 19, 2020 | FPF Staff

The 10th Annual Privacy Papers for Policymakers Event

The Future of Privacy Forum’s 10th annual Privacy Papers for Policymakers event was a hit! This year’s event featured a keynote speech by FTC Commissioner Christine S. Wilson and facilitated discussions between the winning authors – Ignacio Cofone, Neil Richards, Margot Kaminski, Gianclaudio Malgieri, Arunesh Mathur, and Paul Ohm – and policy and regulatory staff, […]

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Call for Public Comments: Resources for Companies Sharing Personal Data with Academic Researchers

February 18, 2020 | Marianne Varkiani

Call for Public Comments: Resources for Companies Sharing Personal Data with Academic Researchers

In June 2019, FPF launched the Corporate-Academic Data Stewardship Research Alliance, a peer-to-peer network of private companies that share the goal of facilitating privacy-protective data sharing between businesses and academic researchers. The Alliance has worked to support data sharing efforts, help address and mitigate challenges that create barriers to sharing, and promote responsible and privacy-protective […]

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