Healthcare technologies are rapidly evolving, producing new data types and innovative data uses. Data and technology can bring significant enhancements to the healthcare system, deepen patients’ and consumers’ engagement and understanding about their health, and be used as part of initiatives meant to improve health outcomes. It is critical to analyze how sensitive health and wellness data affect individual privacy and understand what it means for doctors, researchers, and companies to responsibly use such data. The FPF health team continues to build on its prior work on Consumer Wearables and Wellness Apps and Devices and Privacy Best Practices for Consumer Genetic Testing Services by exploring and addressing issues at the forefront and intersection of health, data, and privacy. Of main focus are the privacy challenges related to the collection, use, and sharing of both medical data and data that falls outside of the scope of HIPAA and FDA regulations. FPF brings together stakeholders to analyze how new technologies and data practices in the health ecosystem can impact individual privacy and promote the more effective and ethical use of data.
Associated Press: Schools debate whether to detail positive tests for athletes
In a recent article published by the Associated Press in The Washington Post and The New York Times, the Future of Privacy Forum warns of the privacy risks of sharing information about positive COVID-19 tests among students, particularly student athletes who have already returned to campus to prepare for the upcoming sports season. Read an excerpt […]
Thermal Imaging as Pandemic Exit Strategy: Limitations, Use Cases and Privacy Implications
Authors: Hannah Schaller, Gabriela Zanfir-Fortuna, and Rachele Hendricks-Sturrup Around the world, governments, companies, and other entities are either using or planning to rely on thermal imaging as an integral part of their strategy to reopen economies. The announced purpose of using this technology is to detect potential cases of COVID-19 and filter out individuals in […]
Bipartisan Privacy Bill Would Govern Exposure Notification Services
Authors: Stacey Gray, Senior Counsel; Katelyn Ringrose, Christopher Wolf Diversity Law Fellow; and Polly Sanderson, Policy Counsel Yesterday, Senators Cantwell (D-WA), Cassidy (R-LA), and Klobuchar (D-MN) introduced a new COVID-19 data protection bill, the Exposure Notification Privacy Act, which would create legal limits for “automated exposure notification services.” The bill comes on the heels of […]
Apple & Google Update Terms for COVID-19 Apps
While the legislative process for COVID-related data is advancing, the business and platform standards for apps are falling in place. Rules for All COVID Apps In response to the coronavirus pandemic, developers are rushing to create applications to support healthcare systems, spread awareness in the community, guide epidemiological research, and mitigate the spread. Apple and […]
New Infographic Illustrates Key Aspects of Location Data
Today, the Future of Privacy Forum (FPF) published an infographic, “The World of Geolocation Data” that outlines how location data is generated from mobile devices, who has access to it, and factors to consider in evaluating privacy risks. Data from our mobile devices, including smartphones and fitness trackers, can serve as a proxy for where […]
Understanding the "World of Geolocation Data"
How is location data generated from mobile devices, who gets access to it, and how? As debates over companies and public health authorities using device data to address the current global pandemic continue, it is more important than ever for policymakers and regulators to understand the practical basics of how mobile operating systems work, how […]
FPF CEO: Will I Install an Exposure Notification App? Thoughts on the Apple-Google API
As a privacy expert, if my local health department develops a mobile app for people with a COVID diagnosis to alert anyone they were near, will I use it? Yes, I will. And I will urge friends, neighbors and colleagues to download such an app. I have an immuno-compromised family member in my household. I am […]
FPF Honors UC-Irvine/Lumos Labs Partnership with First-Ever Award for Research Data Stewardship
Click here to view the Call for Nominations for the 2021 FPF Award for Research Data Stewardship. Click here to watch a recording of the 2020 FPF Award for Research Data Stewardship virtual awards event. University of California Irvine (UCI) Professor of Cognitive Science Mark Steyvers and Lumos Labs – the parent company behind Lumosity, […]
Newly Released COVID-19 Privacy Bills Would Regulate Pandemic-Related Data
By Pollyanna Sanderson (Policy Counsel), Stacey Gray (Senior Policy Counsel) & Katelyn Ringrose (Christopher Wolf Diversity Law Fellow) Yesterday afternoon, leading House and Senate Democrats introduced the Public Health Emergency Privacy Act. The Democratic-led bill, which was introduced by Senators Blumenthal and Warner, as well as Representatives Eshoo, Schakowsky and DelBene, follows the May 10th […]
FPF Charts DPAs’ Priorities and Focus Areas for the Next Decade
The Future of Privacy Forum (FPF) today released a white paper, New Decade, New Priorities: A summary of twelve European Data Protection Authorities’ strategic and operational plans for 2020 and beyond, that provides guidance on the priorities and focus areas that are considered top concerns amongst European Data Protection Authorities (DPAs) for the 2020s and […]