Research often requires using sensitive data to answer important questions. The ethical collection and analysis of personal information can be challenging to do while still protecting the privacy of the implicated individuals, honoring informed consent, and complying with other legal obligations. The technology, policies, and ethical considerations for researchers are constantly shifting, sometimes making it difficult to keep up. That’s why FPF engages stakeholders across academia and industry to produce recommendations, best practices, and ethical review structures that promote responsible research. Our work is centered around streamlining, encouraging, and promoting responsible research that respects essential privacy and ethical considerations throughout the research lifecycle. FPF works with policymakers to develop legislative protections that support effective, responsible research with strong privacy safeguards, including hosting events that allow policymakers and regulators to engage directly with practitioners from academia, advocacy, and industry.
FPF also has an Ethics and Data in Research Working Group. This group receives late-breaking analysis of emerging legislation affecting research and data, meets to discuss the ethical and technological challenges of conducting research, and collaborates to create best practices to protect privacy, decrease risk, and increase data sharing for research, partnerships, and infrastructure. Learn more and join here.
Future of Privacy Forum and Stanford’s Center for Internet and Society Team Up to Talk Big Data Risk and Rewards
For Immediate Release Contact: Melissa Merz, 773.505.6037 [email protected] Tuesday, September 10, 2013 Future of Privacy Forum and Stanford’s Center for Internet and Society Team Up to Talk Big Data Risk and Rewards Washington, DC – The Future of Privacy Forum (FPF) and Stanford’s Center for Internet and Society (CIS) today hosted a forum addressing […]
FPFcast: Talking Consumer Subject Review Boards with Ryan Calo
[audio http://fpf.org/wp-content/uploads/FPFCast.Calo_.mp3] In advance of the Future of Privacy Forum and the Stanford Center for Internet & Society’s event on “Big Data and Privacy” next month, we spoke with Professor Ryan Calo about his essay Consumer Subject Review Boards — A Thought Experiment. Professor Calo looks at how institutional review boards (IRBs) were put in place to […]
Big Data Research
TechAmerica hosted a Congressional Briefing, Big Data: What it Means and How it Drives Innovation, this week. The event’s distinguished panel included a variety of industry experts and focused on the meaning of “Big Data”, how data is being used in the market-place, government uses of “Big Data”, and the future of “Big Data”. The panel […]