Research often requires using sensitive data to answer important questions. The ethical collection and analysis of personal information can be challenging to do while still protecting the privacy of the implicated individuals, honoring informed consent, and complying with other legal obligations. The technology, policies, and ethical considerations for researchers are constantly shifting, sometimes making it difficult to keep up. That’s why FPF engages stakeholders across academia and industry to produce recommendations, best practices, and ethical review structures that promote responsible research. Our work is centered around streamlining, encouraging, and promoting responsible research that respects essential privacy and ethical considerations throughout the research lifecycle. FPF works with policymakers to develop legislative protections that support effective, responsible research with strong privacy safeguards, including hosting events that allow policymakers and regulators to engage directly with practitioners from academia, advocacy, and industry.
The PrivaSeer Project in 2023: Access to 1.4 million privacy policies in one searchable body of documents
In the summer of 2021, FPF announced our participation in a collaborative project with researchers from the Pennsylvania State University and the University of Michigan to develop and build a searchable database of privacy policies and other privacy-related documents, with the support of the National Science Foundation. This project, PrivaSeer, has since become an evolving, […]
FPF Weighs In on the Responsible Use and Adoption of Artificial Intelligence Technologies in New York City Classrooms
Last week, Future of Privacy Forum provided testimony at a joint public oversight hearing before the New York City Council Committees on Technology and Education on “The Role of Artificial Intelligence, Emerging Technology, and Computer Instruction in New York City Public Schools.” Specifically, FPF urged the Council to consider the following recommendations for the responsible adoption […]
Future of Privacy Forum and Leading Companies Release Best Practices for AI in Employment Relationships
Expert Working Group Focused on AI in Employment Launches Best Practices that Promote Non-Discrimination, Human Oversight, Transparency, and Additional Protections. Today, the Future of Privacy Forum (FPF), with ADP, Indeed, LinkedIn, and Workday — leading hiring and employment software developers — released Best Practices for AI and Workplace Assessment Technologies. The Best Practices guide makes […]
Data Sharing for Research: A Compendium of Case Studies, Analysis, and Recommendations
Today, the Future of Privacy Forum (FPF) published a report on corporate-academic partnerships that provides practical recommendations for companies and researchers who want to share data for research. The Report, Data Sharing for Research: A Compendium of Case Studies, Analysis, and Recommendations, demonstrates how, for many organizations, data-sharing partnerships are transitioning from being considered an […]
The Digital Personal Data Protection Act of India, Explained
Authors: Raktima Roy, Gabriela Zanfir-Fortuna Raktima Roy is a Privacy Attorney with several years of experience in India and holds an LLM in Law and Technology from Georgetown University, as well as an FPF Global Privacy Intern. The Digital Personal Data Protection Act of India (DPDP) sprinted through its final stages last week after several years […]
Newly Updated Report: The Spectrum of Artificial Intelligence – Companion to the FPF AI Infographic
Today, we are re-releasing the report: The Spectrum of Artificial Intelligence – Companion to the FPF AI Infographic with new updates to account for the development and use of advanced generative AI tools. In December 2020, FPF published the Spectrum of Artificial Intelligence – An Infographic Tool, designed to visually display the variety and complexity […]
FPF Files Comments with the U.S. Department of Health and Human Services (HHS) Office for Civil Rights
On June 15, the Future of Privacy Forum (FPF) filed comments with the U.S. Department of Health and Human Services (HHS) Office for Civil Rights (OCR) regarding the Notice of Proposed Rulemaking (NPRM) on extending additional protections to reproductive health care data under the Health Insurance Portability and Accountability Act (HIPAA). One year ago last […]
We’re On to Oregon: Sixth State Privacy Law of 2023 Creates New Consumer Rights and Protections
On June 22nd, lawmakers in Salem passed SB 619, the Oregon Consumer Privacy Act (“OCPA”). If enacted by Governor Kotek, Oregon will become the eleventh U.S. state (and sixth in 2023) to adopt broad-based data privacy legislation governing the collection, use, and transfer of consumer data. The bulk of OCPA’s requirements will take effect on […]
Optum & The Mayo Clinic Win the 2022 Award for Research Data Stewardship
Author: Randy Cantz, U.S. Policy Intern, Ethics and Data in Research and former Communications Intern at FPF On Wednesday, May 10, 2023, the Future of Privacy Forum (FPF) honored representatives from Optum and the Mayo Clinic for their outstanding corporate-academic research data-sharing partnership at the 3rd annual Awards for Research Data Stewardship. The awards honor […]
During Asian Pacific American Heritage Month, a look at how better data can benefit AANHPI individuals and communities
May is Asian Pacific American Heritage Month (APAHM), a celebration of Asian Americans, Native Hawaiians, and Pacific Islanders (AANHPIs) in the United States. However, there are challenges that this rapidly growing racial group experiences, specifically regarding the collection and use of AANHPI data. In honor of APAHM, we are highlighting the gaps in research and […]