FPF Submits Comments to the D.C. Council Committee on Health on the Consumer Health Information Privacy Protection Act of 2024 & the Role of Consent
As the D.C. Council considers the important issue of safeguarding health data, FPF writes with feedback on the role of consent in the Consumer Health Information Privacy Protection Act of 2024 (“CHIPPA”). We commend the D.C. Council’s efforts to advance individual health data privacy rights and protections. CHIPPA is closely modeled on Washington State’s My […]
Consumer Health Data Privacy Notices by the Numbers
Today, FPF is releasing an infographic that provides insights into how organizations are responding to the transparency requirements of recently enacted U.S. state health privacy laws. The infographic reflects a survey of privacy notices on the websites of 180+ companies across a variety of industries and sectors, from pharmaceutical to apparel.
Top Six Major Privacy Enforcement Trends: A U.S. Legislation Retrospective
Enforcement activity intensifies as U.S. consumer privacy laws continue to evolve and come into effect. In 2023 and 2024 alone, there have been dozens of enforcement actions at the U.S. federal and state levels, some of which reveal or touch on significant throughlines for privacy policy issues, such as what constitutes a privacy violation or […]
HHS Rulemaking: Reproductive Health Care
In April 2023, the Department of Health and Human Services Office of Civil Rights (HHS OCR) initiated a Notice of Proposed Rulemaking (NPRM) “To Support Reproductive Health Care Privacy” and “modify existing standards by prohibiting uses and disclosures of [Protected Health Information (PHI)] for criminal, civil, or administrative investigations or proceedings against individuals, covered entities […]
FPF Health & Wellness: Mapping the 2024 Health Privacy Landscape, A 2023 Retrospective
In 2023, health data privacy developments were nearly all related to the continuing development of privacy law responses to the Supreme Court’s Dobbs decision and subsequent moves by states to bar access to certain reproductive health care services and to criminally prosecute individuals seeking access to that care. As reproductive health care remains in jeopardy […]
FPF Files Comments with the U.S. Department of Health and Human Services (HHS) Office for Civil Rights
On June 15, 2023, the Future of Privacy Forum (FPF) filed comments with the U.S. Department of Health and Human Services (HHS) Office for Civil Rights (OCR) regarding the Notice of Proposed Rulemaking (NPRM) on extending additional protections to reproductive health care data under the Health Insurance Portability and Accountability Act (HIPAA). FPF’s full comments […]
ITPI: OECD-Israel Workshop January 2021 Report
The Israel Tech Policy Institute (ITPI) published a report on key issues emerging from the OECD Workshop: ‘Supporting Health Innovation with Fair Information Practice Principles‘. The OECD Workshop was held virtually from 19 – 20 January 2021, in collaboration with the Israeli Ministry of Health and the Israel Tech Policy Institute. The report was drafted by Limor Shmerling Magazanik based on […]
FPF Presents Expert Analysis to Washington State Lawmakers as Multiple States Weigh COVID-19 Privacy and Contact Tracing Legislation
On July 28, 2020, the Washington State Senate Committee on Environment, Energy & Technology held a Public Work Session to discuss government uses of data and contact tracing technologies. The Committee invited guest experts to give presentations, including FPF’s Senior Counsel Kelsey Finch, Consumer Reports’ Justin Brookman, and the Washington State Department of Health. In […]
A Practical Path Toward Genetic Privacy in the United States Report
The Future of Privacy Forum (FPF) and Privacy Analytics partnered to publish “A Practical Path Toward Genetic Privacy in the United States.” The white paper is intended to highlight the personal nature of genetic data, describe existing regulatory requirements, and discuss emerging developments regarding the de-identification & re-identification of genetic data while highlighting consensus practices […]
Privacy Best Practices for Consumer Genetic Testing Services
The Future of Privacy Forum, along with leading consumer genetic and personal genomic testing companies 23andMe, Ancestry, Helix, MyHeritage, and Habit, released Privacy Best Practices for Consumer Genetic Testing Services. These companies have been joined by African Ancestry and Living DNA in supporting the Best Practices as a clear articulation of how leading firms can build […]