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[…] regulations. 18 15 Bruynseels, Koen, Filippo Santoni de Sio , and Jeroen van den Hoven. “Digital twins in health care: ethical implications of an emerging engineering paradigm.” Frontiers in genetics 9 (2018): 31. 16 DeCesare, Ana, et al. 2020. “Trade -Off Between Privacy and Efficacy.” Privacy & Pandemics Workshop W orking Paper 54. Future […]
The Urgency of Creating a Slippery Slope Framework
[…] – and – liberties – in – the – fight – against – coronavirus/ 5 For example, consider how Jennifer Lynch, Surveillance Litigation Director at the Electronic Frontier Foundation, characterizes the impact of normalization on people ’s views of facial recognition technology by deliberately blurring the difference between facial verification and facial identification . […]
Technological Inequality, Contextual Privacy, and COVID-19
[…] Racism . NYU Press. Rodriguez, K., Schoen, S., and Windwehr, S. (2020, June 15). Bracelets, Beacons, Barcodes: Wearables in the Global Response to COVID – 19. Electronic Frontier Foundation . https://www.eff.org/deeplinks/2 020/06/bracelets – beacons – barcodes – wearables – global – response – covid – 19 Shacklett, M. (2020, July 1). 3 big data […]
Technological Inequality, Contextual Privacy, and COVID-19
[…] Racism . NYU Press. Rodriguez, K., Schoen, S., and Windwehr, S. (2020, June 15). Bracelets, Beacons, Barcodes: Wearables in the Global Response to COVID – 19. Electronic Frontier Foundation . https://www.eff.org/deeplinks/2 020/06/bracelets – beacons – barcodes – wearables – global – response – covid – 19 Shacklett, M. (2020, July 1). 3 big data […]
Managing Future Pandemics: Benefits and Challenges of Creating a Common Data Space for Highly-Infectious Diseases
[…] research – open – access – 1.16966 ; David Bloom and Daniel Cadarette , “Infectious disease threats in the twenty – first century: Strengthening the global response,” Frontiers in Immunology., March 28, 2019, https://www.frontiersin.org/arti cles/10.3389/fimmu.2019.00549/full ; Simon Hay, et al., “Big data opportunities for global infectious disease surveillance,” PLOS Medicine, April 2, 2013, https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1001413#s4 […]
Managing Future Pandemics: Benefits and Challenges of Creating a Common Data Space for Highly-Infectious Diseases
[…] research – open – access – 1.16966 ; David Bloom and Daniel Cadarette , “Infectious disease threats in the twenty – first century: Strengthening the global response,” Frontiers in Immunology., March 28, 2019, https://www.frontiersin.org/arti cles/10.3389/fimmu.2019.00549/full ; Simon Hay, et al., “Big data opportunities for global infectious disease surveillance,” PLOS Medicine, April 2, 2013, https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1001413#s4 […]
Future of Privacy Forum (FPF) Comments to UNOCHR Special Rapporteur on Child Privacy
[…] years old. 16 14 Marijke De Veirman et al., What Is Influencer Marketing and How Does It Target Children? A Review and Direction for Future Research , Frontiers in Psychology, (December 3, 2019), Accessed September 24, 2020, https://www.frontiersin.org/articles/10.3389/fpsyg.2019.02685/full. 15 Pricewaterhous eCoopers, Kids digital media report 2019 , PwC, (May 2019), 11, Accessed March 12, […]
FPF Testifies at FTC Data Portability Workshop
[…] of data security, privacy, standardization, and interoperability with a range of industry representatives (Mastercard, Digi.me), civil society (Mission:data Coalition), and consumer privacy advocates (Public Knowledge and Electronic Frontier Foundation). Overall, panelists agreed on the need to: promote trust among individuals; provide individuals with greater control over their data; and protect and use consumer data […]
FPF Presents @ RightsCon 2020: “Frontiers in health data privacy: navigating blurred expectations across the patient-consumer spectrum”
The patient-consumer spectrum is a growing concept in which healthcare is rapidly transitioning from a periodic activity in fixed, traditional health care settings to an around-the-clock activity that involves the generation, use, and integration of data reflecting many aspects of individuals’ lives and behaviors. Accompanying this spectrum are blurred distinctions between traditional versus consumer-generated health […]
RightsCon White Paper Recap & Call to Action_ Frontiers in health data privacy
The F u tu re o f P riv a cy F o ru m @ R ig hts C on 2 0 20 Exp lo rin g B lu rre d E xp ecta tio n s o f H ealt h D ata P riv a cy Acro ss […]