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          Gutting the Privacy Act:  Agency use of Systems of Records Notices (SORNs)           Wordcount: 13,831 with footnotes              “By requiring open rule making with the receipt of  comments and an agency statement  explaining the exception for certain categories of  records, the Congress was trying to  avoid creation of a loophole which would permit ent ire agencies to avoid compliance  with the Act.” 1     “The agency’s broad interpretation would bring thro ugh the back door a provision  expressly omitted from the Act as approved by Congr ess and signed into law.” 2                                                        1 James H. Davidson,  The Privacy Act of 1974—Exceptions and Exemptions , 34 F ED . BAR  J. 279 (1975),  available in  L EGISLATIVE  HISTORY OF THE  PRIVACY  ACT OF  1974, S OURCE  BOOK ON  PRIVACY , 1191, 1193  (1976) [hereinafter Davidson  Privacy Act].  2 Vymetalik v. F.B.I. , 785 F.2d 1090, 1095 (C.A.D.C. 1986).        […]

!1!Beyond’IRBs:’Ethical’Guidelines’for’Data’Research”’Omer%Tene%and%Jules%Polonetsky%*%!!The! ethical! framework! applying! to! human! subject! research! in! the! biomedical! and!behavioral! research! fields! dates! back! to! the! Belmont! Report.1!Drafted! in! 1976! and!adopted!by!the!United!States!government!in1991!as!the!Common!Rule,2!the!Belmont!principles! were! geared! towards!a! paradigmatic! controlled! scientific! experiment!with!a! limited! population!of! human! subjects! interacting! directly! with!researchers!and!manifesting!their! informed! consent.! These! days,! researchers! in! academic!institutions! as! well! as! private! sector! businesses! not! subject! to! the! Common! […]

!1!Beyond’IRBs:’Ethical’Guidelines’for’Data’Research”’Omer%Tene%and%Jules%Polonetsky%*%!!The! ethical! framework! applying! to! human! subject! research! in! the! biomedical! and!behavioral! research! fields! dates! back! to! the! Belmont! Report.1!Drafted! in! 1976! and!adopted!by!the!United!States!government!in1991!as!the!Common!Rule,2!the!Belmont!principles! were! geared! towards!a! paradigmatic! controlled! scientific! experiment!with!a! limited! population!of! human! subjects! interacting! directly! with!researchers!and!manifesting!their! informed! consent.! These! days,! researchers! in! academic!institutions! as! well! as! private! sector! businesses! not! subject! to! the! Common! […]

POLONETSKY*&*TENE*FINAL.DOCX*(DO*NOT*DELETE)*6/4/15*6:51*PM**333*BEYOND’THE’COMMON’RULE:””””””””’ETHICAL’STRUCTURES’FOR’DATA’RESEARCH’IN’NON4ACADEMIC’SETTINGS’JULES*POLONETSKY,*OMER*TENE,*&*JOSEPH*JEROME**ABSTRACT*…………………………………………………………………………………………………….*333!INTRODUCTION*…………………………………………………………………………………………….*334!I.!BIG*DATA*BENEFITS—AND*RISKS*……………………………………………………………*337!II.!CONTEXTUAL*AND*NONGCONTEXTUAL*DATA*USE*…………………………………..*339!III.!WHAT*SHOULD*BE*COVERED*BY*A*CSRB*………………………………………………..*341!A.!Data&experimentation*………………………………………………………………*341!B.!Non1contextual&data&uses*………………………………………………………..*346!C.!Disparate&impact*………………………………………………………………………*349!IV.!CSRB*STRUCTURE*………………………………………………………………………………….*352!A.!Who&is&covered*…………………………………………………………………………..*352!B.!External&(FTC1approved)&or&Internal&(Organization1led)*…*353!V.!GUIDELINES*FOR*CSRB*ENGAGEMENT*…………………………………………………….*356!A.!Guiding&Substantive&Principles*……………………………………………….*356!1.!Respect*for*persons*…………………………………………………………*357!2.!Beneficence*………………………………………………………………………..*358!3.!Justice*………………………………………………………………………………….*360!4.*Respect*for*law*………………………………………………………………….*361!B.!Promoting&Independence&and&Trust*………………………………………*362!C.&Documentation&and&Accountability*……………………………………….*365!CONCLUSION*…………………………………………………………………………………………………*366!*ABSTRACT*As* scientific* knowledge* advances,* new* data* uses* continuously*emerge* in* a* wide* variety* of* contexts,* from* combating* fraud* in* the*payment* card* industry,*to*reducing* the* time* commuters*spend* on*the* road,*detecting* harmful* drug* interactions,* improving* marketing*mechanisms,* personalizing* the* delivery* of* education* in* K–12*************Jules*Polonetsky*is*CoGchair*and*Executive*Director,*Omer*Tene*Senior*Fellow,*and*Joseph* Jerome* Policy* Counsel* at* the* Future* of* Privacy* Forum.* We* would* like* to* thank*Arielle*Brown*for*excellent*assistance*with*research*and*drafting.** POLONETSKY*&*TENE*FINAL.DOCX*(DO*NOT*DELETE)*6/4/15**6:51*PM*334*COLO.&TECH.&L.J.*[Vol.*13*schools,*encouraging*exercise*and*weight*loss,*and*much*more.1*At* corporations,* notGforGprofits,* […]

Understanding Federal Preemption Stacey Gray Pollyanna Sanderson Professor Peter Swire December 1 9, 2019 FPF’s Privacy Legislation Series Goal: Providing independent, pragmatic resources to legislative staff and policy experts working on legislation, in support of a baseline, comprehensive privacy law in the United States FPF’s Mission: Bridging the policymaker-industry-academic gaps in privacy public policy; developing […]

Understanding Federal Preemption Stacey Gray Pollyanna Sanderson Professor Peter Swire December 1 9, 2019 FPF’s Privacy Legislation Series Goal: Providing independent, pragmatic resources to legislative staff and policy experts working on legislation, in support of a baseline, comprehensive privacy law in the United States FPF’s Mission: Bridging the policymaker-industry-academic gaps in privacy public policy; developing […]

Hig her E d W ork in g G ro up 0 2-0 8-2 019 _____________________ ___ ____ __ FP F U pdate s ● New in it ia tiv e s o n s tu dent s u cce ss o n c o lle ge c a m puse s ○ Georg e […]

Checkifself-employed OMB No. 1545-0047 Department of the TreasuryInternal Revenue Service Check ifapplicable: AddresschangeNamechangeInitialreturnFinalreturn/termin-ated Gross receipts $ AmendedreturnApplica-tionpending Are all subordinates included? 732001 11-28-17 Beginning of Current Year Paid Preparer Use Only Under section 501(c), 527, or 4947(a)(1) of the Internal Revenue Code (except private foundations) | Do not enter social security numbers on this form […]

Checkifself-employed OMB No. 1545-0047 Department of the TreasuryInternal Revenue Service Check ifapplicable: AddresschangeNamechangeInitialreturnFinalreturn/termin-ated Gross receipts $ AmendedreturnApplica-tionpending Are all subordinates included? 732001 11-28-17 Beginning of Current Year Paid Preparer Use Only Under section 501(c), 527, or 4947(a)(1) of the Internal Revenue Code (except private foundations) | Do not enter social security numbers on this form […]

NOTHING TO HIDE: Tools for Talking (and Listening) About Data Privacy for Integrated Data Systems OCTOBER 2018 Acknowledgements: We extend our thanks to the AISP Network and Learning Community, whose members provided their support and input throughout the development of this toolkit. Special thanks to Whitney Leboeuf, Sue Gallagher, and Tiffany Davenport for sharing their […]