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[…] tools and consumer health technologies? 7. How can organizations build trustworthiness while innovating with health data for public good and commercial use? 8. What role should sector-specific codes of conduct or certifications play? 0–3 PRE-READ DOCUMENTS (optional) ● Comparison of Consumer Health Privacy Frameworks: New York, Washington, and Connecticut ● Consumer Health Data Privacy […]

[…] minimization, potentially raising considerable compliance challenges for companies engaged in any aspect of digital advertising. This session will begin with a short presentation by FPF’s Policy Counsel Jordan Francis on a new analysis of data minimization and key questions and operational challenges arising from what might well be a paradigm shift in compliance in […]

[…] protections for consumer health data. New Y ork passed, but has not yet enacted, a broad bill similar to Washington State’ s My Health My Data Act. Virginia updated its Consumer Protection Act to prohibit obtaining, disclosing, selling, or disseminating any personally identifiable reproductive or sexual health information without a consumer’ s consent. How […]

In May 2025, Nebraska and Vermont passed Age-Appropriate Design Code Acts (AADCs), continuing the bipartisan trend of states advancing protections for youth online. While these new bills arrived within the same week and share both a common name and general purpose, their scope, applicability, and substance take two very different approaches to a common goal: crafting a design […]

In May 2025, Nebraska and Vermont passed Age-Appropriate Design Code Acts (AADCs), continuing the bipartisan trend of states advancing protections for youth online. While these new bills arrived within the same week and share both a common name and general purpose, their scope, applicability, and substance take two very different approaches to a common […]

WORKING GROUPS FPF Working Groups bring industry leaders together with FPF staff and experts to develop best practices, share insights, and promote pragmatic public policy solutions. Working Group members receive regular written updates on privacy developments in their field. FPF members can access these working groups via the FPF Portal communities. For those without […]

[…] the IAPP Global Privacy Summit 2023 in Washington, D.C. The IAPP Leadership Award is given annually to individuals who “demonstrate an ongoing commitment to furthering privacy policy, promoting recognition of privacy issues, and advancing the growth and visibility of the profession.” 21 ANNUAL REPORT 2023 Members of the FPF Advisory Board receive increased engagement […]

[…] lowest numerical applicability thresholds of any of the state comprehensive privacy laws when the law was enacted in 2023. At that time, prior comprehensive privacy laws in Virginia, Colorado, Utah, Connecticut, Iowa, and Indiana all applied to controllers that either (1) control or process the personal data of at least 100,000 consumers (“the general […]

[…] the advancement of science and healthcare improvements which are accomplished with de-identified data. Properly implemented de-identification complying with the HIPAA de-identification provisions goes a long way toward promoting such a reasonable balance, but I would suggest that there is still room for further improvements in this regard. Where Should We Go From Here? Perhaps […]

[…] values are replaced with broader, less precise categories. Examples include replacing an exact birth date with just the birth year or an age range, a specific ZIP code with a larger geographic area, or a specific occupation with a broader job category. This is a core technique used to achieve k-anonymity. While it reduces […]