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[…] trend to modernize their regulatory approach, several of them proposing sandboxes (e.g., the CNIL and the Norwegian DPA), and pushing for more self-regulation, like the adoption of Codes of Conduct. DPAs also plan on dedicating efforts to make GDPR compliance work in practice on a large scale by targeting the empowerment of DPOs and […]

[…] Using a researcher-friendly version of Empatica’s E4 device that prevents the collection of geolocation data, IP address, or mobile International Mobile Equipment Identity (IMEI) identifiers. Using QR codes to link participants to specific wearable devices to ensure that participant names and study record IDs would not be shared. Learn more about the project, including […]

[…] all plans, processes, and frameworks throughout the research collaboration. Use Technology to Enhance Privacy. The Stanford research team and Empatica took advantage of technology, where possible, to promote privacy throughout the project. Stanford employed QR codes to prevent the need to share participant identifiers, including names and study record IDs, with Empatica. Use Privacy-Protective […]

[…] health information. Using a researcher-friendly device, Empatica’s E4, that prevents the collection of geolocation data, IP address, or mobile International Mobile Equipment Identity (IMEI) identifiers. Using QR codes to link participants to specific wearable devices to ensure that participant names and study record IDs would not be shared. “A large part of our job […]

[…] of ‘publishers of news and current affairs content’ and ‘publishers of online curated content’. Part III then sets up extensive requirements for publishers to adhere to specific codes of ethics, onerous content take-down requirements and three-tier grievance process with appeals lying to an Executive Inter-Departmental Committee of Central Government bureaucrats.  Finally, the Rules contain […]

[…] profiling and automated decision-making, following the passage of the GDPR. Lawmakers may also seek to ensure interoperability with the newly passed California Privacy Rights Act (CPRA) or Virginia Consumer Data Protection Act (VA-CDPA), both of which create requirements that impact automated decision-making, including profiling. Finally, the Federal Trade Commission enforces a number of laws […]

[…] so confidentially, at no cost, if you provide feedback on the process. If you have a project that you think should be reviewed by the Ethical Data Use Committee or if you would like to recommend yourself or someone else as a member for the inaugural review term, please contact Dr. Sara Jordan at [email protected].

Last week, on April 8, 2021, FPF’s Dr. Sara Jordan testified before the California House Committee on Privacy and Consumer Protection on AB-13 (Public contracts: automated decision systems). The legislation passed out of committee (9 Ayes, 0 Noes) and was re-referred to the Committee on Appropriations. The bill would regulate state procurement, use, and […]

[…] on the value of data for research and strategies for oversight. FPF has shared model bill language with lawmakers developing comprehensive privacy laws in California, Washington, and Virginia to encourage them to both protect data-driven research and create oversight by requiring it to be approved, monitored, and governed by an independent oversight entity. Exploring […]