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In 2023, four states enacted new genetic privacy laws regulating direct-to-consumer genetic testing companies. This blog post provides details on what these new laws cover and how they compare to FPF’s widely-adopted Best Practices for Consumer Genetic Testing Services.  Genetic privacy has been under increasing scrutiny at the state and federal levels, and regulators are […]

The Future of Privacy Forum (FPF) has been awarded grants by the Department of Energy (DOE) and the National Science Foundation (NSF) to support FPF’s establishment of a Research Coordination Network (RCN) for Privacy-Preserving Data and Analytics. FPF’s work will support the development and deployment of Privacy Enhancing Technologies (PETs) for beneficial data sharing and […]

In 2023, health data privacy developments were nearly all related to the continuing development of privacy law responses to the Supreme Court’s Dobbs decision and subsequent moves by states to bar access to certain reproductive health care services and to criminally prosecute individuals seeking access to that care. As reproductive health care remains in jeopardy […]

In 2024, health and wellness-focused companies are increasingly integrating AI to streamline their services–with the expansion of AI-enabled digital health, the universe of potential health inferences will also expand, triggering new concerns about patient and consumer privacy. At this intersection of reproductive health privacy and AI concerns, state legislators and federal regulators appear poised to […]

FPF has appointed international technology policy expert Anne J. Flanagan as Vice President for Artificial Intelligence (AI). In this new role, Anne will lead the privacy organization’s portfolio of projects exploring the data flows driving algorithmic and AI products and services, their opportunities and risks, and the ethical and responsible development of this technology. Anne […]