Dr. Rachele Hendricks-Sturrup is Health Policy Counsel and Lead at the Future of Privacy since October 2019. She holds a Doctor of Health Science, Master of Art in Legal Studies, and Master of Science in Pharmacology and Toxicology. Dr. Hendricks-Sturrup has over 12 years of cumulative experience in healthcare and biomedical research, health journalism, and engagement with digital health companies and startups. Having received mixed-methods research training a Research Fellow within the Department of Population Medicine (DPM) at the Harvard Pilgrim Health Care Institute and Harvard Medical School, she addresses ethical, legal, and social issues at the forefront of health policy and innovation. Dr. Hendricks-Sturrup was the first and only Thomas O. Pyle Fellow within the DPM to conduct qualitative semi-structured interviews with ten United States legislators and legislative staff, a research strategy and endeavor that is rarely pursued or successful across any academic institution. Dr. Hendricks-Sturrup also engages with patient and provider community stakeholders and applies implementation science frameworks to identify and address various policy, legal, ethical, economic and societal issues at the forefront of precision medicine and develop policy recommendations and best practices. She has published several pieces on the importance of diversity, fairness, and privacy in genomic medicine research in several peer-reviewed journals, media platforms, and books that include but are not limited to Bill of Health, Genetic Literacy Project, New York Times, and DNA Technology.
Building on FPF’s Privacy Best Practices for Consumer Genetic Testing Services, Dr. Hendricks-Sturrup published a commentary in Journal of Personalized Medicine, entitled “Direct-to-Consumer Genetic Testing Data Privacy: Key Concerns and Recommendations Based on Consumer Perspectives.” In this commentary, she examined how direct-to-consumer genetic testing companies engage health consumers in unprecedented ways and provided additional best practices for direct-to-consumer genetic testing companies engaging in the health sector. As FPF’s health lead, Dr. Hendricks-Sturrup works with stakeholders to advance opportunities for data to be used for research and real world evidence, improve patient care, and allow patients to access their medical records. She continues to develop FPF’s projects and best practices around genetic data, wearables, and machine learning with health data.