Healthcare technologies are rapidly evolving, producing new data types and innovative data uses. Data and technology can bring significant enhancements to the healthcare system, deepen patients’ and consumers’ engagement and understanding about their health, and be used as part of initiatives meant to improve health outcomes. It is critical to analyze how sensitive health and wellness data affect individual privacy and understand what it means for doctors, researchers, and companies to responsibly use such data. The FPF health team continues to build on its prior work on Consumer Wearables and Wellness Apps and Devices and Privacy Best Practices for Consumer Genetic Testing Services by exploring and addressing issues at the forefront and intersection of health, data, and privacy. Of main focus are the privacy challenges related to the collection, use, and sharing of both medical data and data that falls outside of the scope of HIPAA and FDA regulations. FPF brings together stakeholders to analyze how new technologies and data practices in the health ecosystem can impact individual privacy and promote the more effective and ethical use of data.
Student Privacy, Special Education, and Online Learning: Navigating COVID-19 and Beyond
COVID-19 continues to disrupt education…And virtual learning poses unique student privacy challenges, particularly for students with disabilities
Future of Privacy Forum, National Center on Learning Disabilities Release New Student Privacy and Virtual Learning Guide
The Future of Privacy Forum (FPF) and the National Center for Learning Disabilities (NCLD) today released a new resource designed to help educators navigate the unique student privacy challenges raised by COVID-19 and the shift to virtual learning, particularly for students with disabilities. Student Privacy and Special Education: An Educator’s Guide During and After COVID-19 […]
FPF Releases Follow-Up Report on Consumer Genetics Companies and Practice of Transparency Reporting
Today, the Future of Privacy Forum (FPF) published “Consumer Genetic Testing Companies & The Role of Transparency Reports in Revealing Government Requests for User Data,” examining how leading consumer genetic testing companies require valid legal processes before disclosing consumer genetic information to the government, as well as how companies publish transparency reports around such disclosures. […]
FPF & VUB Roundtable – Banking on Personal Data
Authors: Caroline Hopland, Ine van Zeeland, and Rob van Eijk FPF & Vrije Universiteit Brussel: Banking on Personal Data Last week, Future of Privacy Forum (FPF) and Vrije Universiteit Brussel (VUB) hosted a roundtable on open banking. Twenty subject-matter experts discussed some of the main challenges in banking and data protection law: consent and its […]
California SB 980 Would Codify Many of FPF’s Best Practices for Consumer Genetic Testing Services, but Key Differences Remain
Authors: John Verdi (Vice President of Policy) and Katelyn Ringrose (Christopher Wolf Diversity Law Fellow) In July 2018, the Future of Privacy Forum released Privacy Best Practices for Consumer Genetic Testing Services. FPF developed the Best Practices following consultation with technical experts, regulators, leading consumer genetic and personal genomic testing companies, and civil society. The […]
FPF & BrightHive Release Playbook to Create Responsible Contact Tracing Initiatives, Address Privacy & Ethics Concerns
A new playbook from the Future of Privacy Forum (FPF) and BrightHive, Responsible Data Use Playbook for Digital Contact Tracing, provides a series of considerations to assist stakeholders in setting up a digital contact tracing initiative to track and manage the spread of COVID-19, while addressing privacy concerns raised by these technologies in an ethical, […]
Strong Data Encryption Protects Everyone: FPF Infographic Details Encryption Benefits for Individuals, Enterprises, and Government Officials
Today, the Future of Privacy Forum released a new tool: the interactive visual guide “Strong Data Encryption Protects Everyone.” The infographic illustrates how strong encryption protects individuals, enterprises, and the government. FPF’s guide also highlights key risks that arise when encryption safeguards are undermined – risks that can expose sensitive health and financial records, undermine the […]
Dr. Rachele Hendricks-Sturrup Discusses Trends in Health Data
We’re talking to FPF senior policy experts about their work on important privacy issues. Today, Dr. Rachele Hendricks-Sturrup, Health Policy Counsel, is sharing her perspective on health data and privacy. Dr. Hendricks-Sturrup has more than 12 years of experience in healthcare and biomedical research, health journalism, and engagement with digital health companies and startups. […]
FPF Webinar Explores the Future of Privacy-Preserving Machine Learning
On June 8, FPF hosted a webinar, Privacy Preserving Machine Learning: New Research on Data and Model Privacy. Co-hosted by the FPF Artificial Intelligence Working Group and the Applied Privacy Research Coordination Network, an NSF project run by FPF, the webinar explored how machine learning models as well as data fed into machine learning models […]
Privacy Scholarship Research Reporter: Issue 5, July 2020 – Preserving Privacy in Machine Learning: New Research on Data and Model Privacy
Notes from FPF In this edition of the “Privacy Scholarship Reporter”, we build on the general knowledge from the first two and then explore some of the technical research being conducted to achieve ethical and privacy goals. “Is it possible to preserve privacy in the age of AI?”, is a provocative question asked by academic […]