Healthcare technologies are rapidly evolving, producing new data types and innovative data uses. Data and technology can bring significant enhancements to the healthcare system, deepen patients’ and consumers’ engagement and understanding about their health, and be used as part of initiatives meant to improve health outcomes. It is critical to analyze how sensitive health and wellness data affect individual privacy and understand what it means for doctors, researchers, and companies to responsibly use such data. The FPF health team continues to build on its prior work on Consumer Wearables and Wellness Apps and Devices and Privacy Best Practices for Consumer Genetic Testing Services by exploring and addressing issues at the forefront and intersection of health, data, and privacy. Of main focus are the privacy challenges related to the collection, use, and sharing of both medical data and data that falls outside of the scope of HIPAA and FDA regulations. FPF brings together stakeholders to analyze how new technologies and data practices in the health ecosystem can impact individual privacy and promote the more effective and ethical use of data.
Innovation and Data Privacy Are Not Natural Enemies: Insights from Korea’s Experience
The following is a guest post to the FPF blog authored by Dr. Haksoo Ko, Professor at Seoul National University School of Law, FPF Senior Fellow and former Chairperson of South Korea’s Personal Information Protection Commission. The guest post reflects the opinion of the author only and does not necessarily reflect the position or views […]
Five Big Questions (and Zero Predictions) for the U.S. Privacy and AI Landscape in 2026
Introduction For better or worse, the U.S. is heading into 2026 under a familiar backdrop: no comprehensive federal privacy law, plenty of federal rumblings, and state legislators showing no signs of slowing down. What has changed is just how intertwined privacy, youth, and AI policy debates have become, whether the issue is sensitive data, data-driven […]
Future of Privacy Forum Appoints Matthew Reisman as Vice President of U.S. Policy
Washington, D.C. — (December 9, 2025) — The Future of Privacy Forum (FPF), a global non-profit focused on data protection, AI, and data governance, has appointed Matthew Reisman as Vice President, U.S. Policy. Reisman brings extensive experience in privacy policy, data protection, and AI governance to FPF. He most recently served as a Director of […]
FPF Holiday Gift Guide for AI-Enabled, Privacy-Forward AgeTech
On Cyber Monday, giving supportive technology to an older loved one or caregiver is a great option. Finding the perfect holiday gift for an older adult who values their independence can be a challenge. This year, it might be worth exploring the exciting world of AI-enabled AgeTech. It’s not only gadgets; it’s also about giving […]
“Personality vs. Personalization” in AI Systems: Intersection with Evolving U.S. Law (Part 3)
This post is the third in a series on personality versus personality in AI systems. Read Part 1 (exploring concepts) and Part 2 (concrete uses and risks). Conversational AI technologies are hyper-personalizing. Across sectors, companies are focused on offering personalized experiences that are tailored to users’ preferences, behaviors, and virtual and physical environments. These […]
Tech to Support Older Adults and Caregivers: Five Privacy Questions for Age Tech
Introduction As the U.S. population ages, technologies that can help support older adults are becoming increasingly important. These tools, often called “AgeTech”, exist at the intersection of health data, consumer technology, caregiving relationships, and increasingly, artificial intelligence, and are drawing significant investment. Hundreds of well funded start-ups have launched. Many are of major interest to […]
The Connecticut Data Privacy Act Gets an Overhaul (Again)
Co-Authored by Gia Kim, FPF U.S. Policy Intern On June 25, Governor Ned Lamont signed SB 1295, amending the Connecticut Data Privacy Act (CTDPA). True to its namesake as the “Land of Steady Habits,” Connecticut is developing the habit of amending the CTDPA. Connecticut has long been ahead of the curve, especially when it comes […]
FPF Launches Major Initiative to Study Economic and Policy Implications of AgeTech
FPF and University of Arizona Eller College of Management Awarded Grant by Alfred P. Sloan Foundation to Address Privacy Implications, and Data Uses of Technologies Aimed at Aging At Home The Future of Privacy Forum (FPF) — a global non-profit focused on data protection, AI and emerging technologies–has been awarded a grant from the Alfred […]
Chatbots in Check: Utah’s Latest AI Legislation
With the close of Utah’s short legislative session, the Beehive State is once again an early mover in U.S. tech policy. In March, Governor Cox signed several bills related to the governance of generative Artificial Intelligence systems into law. Among them, SB 332 and SB 226 amend Utah’s 2024 Artificial Intelligence Policy Act (AIPA) while […]
Chile’s New Data Protection Law: Context, Overview, and Key Takeaways
On August 26, 2024, the Chilean Congress approved Law 21.719, on the Protection of Personal Data (“LPPD”) after eight years of legislative debate. The legislation was published on December 13, 2024, and will become fully effective twenty-four months after that date (in December 2026). The LPPD was introduced in the Senate in 2017 to replace […]