Research often requires using sensitive data to answer important questions. The ethical collection and analysis of personal information can be challenging to do while still protecting the privacy of the implicated individuals, honoring informed consent, and complying with other legal obligations. The technology, policies, and ethical considerations for researchers are constantly shifting, sometimes making it difficult to keep up. That’s why FPF engages stakeholders across academia and industry to produce recommendations, best practices, and ethical review structures that promote responsible research. Our work is centered around streamlining, encouraging, and promoting responsible research that respects essential privacy and ethical considerations throughout the research lifecycle. FPF works with policymakers to develop legislative protections that support effective, responsible research with strong privacy safeguards, including hosting events that allow policymakers and regulators to engage directly with practitioners from academia, advocacy, and industry.
Call for Position Statements on Responsible Uses of Technology and Health Data During Times of Crisis
Event Overview The Future of Privacy Forum, in collaboration with the National Science Foundation, Duke Sanford School of Public Policy, SFI ADAPT Research Centre, Dublin City University, and Intel Corporation presents Privacy & Pandemics: Responsible Uses of Technology and Health Data During Times of Crisis — An International Tech and Data Conference, including a two day […]
Protected: Future of Privacy Forum’s 2020 Annual Meeting
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11th Annual Privacy Papers for Policymakers — Call for Nominations
The Future of Privacy Forum (FPF) invites privacy scholars and authors with an interest in privacy issues to nominate finished papers for consideration for FPF’s annual Privacy Papers for Policymakers Award. PURPOSE To recognize the year’s leading privacy research and analytical work that is relevant to policymakers in the United States Congress, at U.S. federal […]
California SB 980 Would Codify Many of FPF’s Best Practices for Consumer Genetic Testing Services, but Key Differences Remain
Authors: John Verdi (Vice President of Policy) and Katelyn Ringrose (Christopher Wolf Diversity Law Fellow) In July 2018, the Future of Privacy Forum released Privacy Best Practices for Consumer Genetic Testing Services. FPF developed the Best Practices following consultation with technical experts, regulators, leading consumer genetic and personal genomic testing companies, and civil society. The […]
FPF & BrightHive Release Playbook to Create Responsible Contact Tracing Initiatives, Address Privacy & Ethics Concerns
A new playbook from the Future of Privacy Forum (FPF) and BrightHive, Responsible Data Use Playbook for Digital Contact Tracing, provides a series of considerations to assist stakeholders in setting up a digital contact tracing initiative to track and manage the spread of COVID-19, while addressing privacy concerns raised by these technologies in an ethical, […]
Dr. Rachele Hendricks-Sturrup Discusses Trends in Health Data
We’re talking to FPF senior policy experts about their work on important privacy issues. Today, Dr. Rachele Hendricks-Sturrup, Health Policy Counsel, is sharing her perspective on health data and privacy. Dr. Hendricks-Sturrup has more than 12 years of experience in healthcare and biomedical research, health journalism, and engagement with digital health companies and startups. […]
Privacy Scholarship Research Reporter: Issue 5, July 2020 – Preserving Privacy in Machine Learning: New Research on Data and Model Privacy
Notes from FPF In this edition of the “Privacy Scholarship Reporter”, we build on the general knowledge from the first two and then explore some of the technical research being conducted to achieve ethical and privacy goals. “Is it possible to preserve privacy in the age of AI?”, is a provocative question asked by academic […]
Commoditization of Data is the Problem, Not the Solution – Why Placing a Price Tag on Personal Information May Harm Rather Than Protect Consumer Privacy
This guest post is by Lokke Moerel, a Professor of Global ICT Law at Tilburg University and Senior of Counsel at Morrison & Foerster in Berlin, and Christine Lyon, partner at Morrison & Foerster in Palo Alto, California. To learn more about FPF in Europe, please visit https://fpf.org/eu. By Lokke Moerel and Christine Lyon[1] Friend and […]
Remarks on Diversity and Inclusion by Michael McCullough
Last Thursday, June 18, 2020, Macy’s Chief Privacy Officer and FPF Advisory Board member Michael McCullough spoke about diversity and inclusion at WireWheel’s Spokes 2020 conference. The Question: I’ve spoken to each of you about your views on diversity and equality, and about how that’s reflected in our privacy and data protection community. This has […]
Juneteenth
FPF is closed for Juneteenth as our staff reflects on both the history and current state of racism in America. Our social media accounts will be silent, other than to elevate voices that can help us learn and take action on issues such as equity and inclusion. In that spirit, we would like to call […]