FPF and Leading Health & Equity Organizations Issue Principles for Privacy & Equity in Digital Contact Tracing Technologies
With support from the Robert Wood Johnson Foundation, FPF engaged leaders within the privacy and equity communities to develop actionable guiding principles and a framework to help bolster the responsible implementation of digital contact tracing technologies (DCTT). Today, seven privacy, civil rights, and health equity organizations signed on to these guiding principles for organizations implementing […]
FPF & BrightHive Release Playbook to Create Responsible Contact Tracing Initiatives, Address Privacy & Ethics Concerns
A new playbook from the Future of Privacy Forum (FPF) and BrightHive, Responsible Data Use Playbook for Digital Contact Tracing, provides a series of considerations to assist stakeholders in setting up a digital contact tracing initiative to track and manage the spread of COVID-19, while addressing privacy concerns raised by these technologies in an ethical, […]
Privacy Best Practices for Consumer Genetic Testing Services
The Best Practices provide a policy framework for the collection, protection, sharing, and use of Genetic Data generated by consumer genetic testing services. These services are commonly offered to consumers for testing and interpretation related to ancestry, health, nutrition, wellness, genetic relatedness, lifestyle, and other purposes.
Future of Privacy Forum and Leading Genetic Testing Companies Announce Best Practices to Protect Privacy of Consumer Genetic Data
Washington, DC – Today, Future of Privacy Forum, along with leading consumer genetic and personal genomic testing companies 23andMe, Ancestry, Helix, MyHeritage, and Habit, released Privacy Best Practices for Consumer Genetic Testing Services. The Best Practices provide a policy framework for the collection, protection, sharing, and use of Genetic Data generated by consumer genetic testing services. These services are commonly offered to consumers for testing and interpretation related to ancestry, health, nutrition, wellness, genetic relatedness, lifestyle, and other purposes.
FPF Statement on Privacy and Wearables
A new report released today by the Center for Digital Democracy and the School of Communications at American University focuses on privacy and wearables. As a recent HHS report made clear, the data collected by most wearables is not regulated to the same degree as information you provide to your doctor. But several mechanisms have ensured that many health and fitness apps respect users’ data – the leading app platforms impose strong privacy requirements, barring sale of sensitive data and requiring enhanced notice.
Future of Privacy Forum Releases Best Practices for Consumer Wearables and Wellness Apps and Devices
Washington, DC – Today, the Future of Privacy Forum (FPF) released Best Practices for Consumer Wearables and Wellness Apps and Devices, a detailed set of guidelines that responsible companies can follow to ensure they provide practical privacy protections for consumer-generated health and wellness data. The document was produced with support from the Robert Wood Johnson Foundation and incorporates input from a wide range of stakeholders including companies, advocates, and regulators.
CEA releases guiding privacy & security principles for wearable technologies
Yesterday, October 26th, the Consumer Electronics Association (CEA) announced voluntary guidelines for organizations that manage personal and health-related data, particularly as generated by consumer wearable technologies. This step illustrates CEA’s attempt to promote consumer trust in technology companies producing and supporting health trackers and other wearable technologies.