Data Sharing for Research Compendium of Case Studies, Analysis, and Recommendations is a report on corporate-academic partnerships that provides practical recommendations for companies and researchers who want to share data for research. The report, along with its case studies, demonstrates how for many organizations, data-sharing partnerships are transitioning from being considered an experimental business activity […]
On Wednesday, May 10, 2023, the Future of Privacy Forum (FPF) honored representatives from Optum and the Mayo Clinic for their outstanding corporate-academic research data-sharing partnership at the 3rd annual Awards for Research Data Stewardship. The awards honor companies and researchers that prioritize privacy-oriented and ethical data sharing for research. In a keynote address, United […]
Race Equity, Surveillance in the Post-Roe Era, and Data Protection Frameworks in the Global South are Major Topics During This Year’s Privacy Papers for Policymakers Event
The Future of Privacy Forum (FPF) hosted a Capitol Hill event honoring 2022’s must-read privacy scholarship at the 13th annual Privacy Papers for Policymakers Awards ceremony. This year’s event featured an opening keynote by FTC Commissioner Alvaro Bedoya as well as facilitated discussions with the winning authors: Anita Allen, Anupam Chander, Eunice Park, Pawel Popiel, […]
The Playbook: Data Sharing for Research is an FPF report on the best practices for instituting research data-sharing programs between corporations and research institutions. FPF also developed a summary of recommendations from the full report as well as an infographic on The Value of Responsible Data Sharing for Research. The playbook addresses vital steps for data […]
Privacy Harms, Global Privacy Regulation, and Algorithmic Decision Making are Major Topics During Privacy Papers for Policymakers Event
For the 12th year, the Future of Privacy Forum (FPF) hosted its Privacy Papers for Policymakers event, honoring the 2021 Privacy Papers for Policymakers Award winners. This year’s event featured an opening keynote by Colorado Attorney General Phil Weiser and facilitated discussions between the winning authors – Daniel Solove, Ben Green, Woody Hartzog, Neil Richards, […]
Analysis of personal data can be used to improve services, advance research, and combat discrimination. However, such analysis can also create valid concerns about differential treatment of individuals or harmful impacts on vulnerable communities. These concerns can be amplified when automated decision-making uses sensitive data (such as race, gender, or familial status), impacts protected classes, or affects individuals’ eligibility for housing, employment, or other core services. When seeking to identify harms, it is important to appreciate the context of interactions between individuals, companies, and governments—including the benefits provided by automated decision-making frameworks, and the fallibility of human decision-making.
Today, the Future of Privacy Forum (FPF) and the Ohio State University’s Program on Data and Governance are holding a discussion of ethics, privacy and practical research reviews in corporate settings. This timely event, which follows the White House’s call to develop strong data ethics frameworks, convened corporate and academic leaders to discuss how to integrate ethical and privacy considerations into innovative data projects and research.