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[…] in this area, state legislators have been the most active in mandating protections for this particularly sensitive category of personal information. In 2023, Montana, Tennessee, Texas, and Virginia joined six other states (Arizona, California, Kentucky, Maryland, Utah, and Wyoming) that have enacted privacy laws for direct-to-consumer genetic testing companies. These four newly enacted laws […]

[…] indicated that this did “not exclude additional UOOMs from meeting the requirements” in the future. This could mean the other shortlisted opt out mechanisms (i.e., the OptOut Code or the Opt-Out Machine) or some tool that has not yet been developed may be able to be approved in the future. However, the process for […]

In 2024, health and wellness-focused companies are increasingly integrating AI to streamline their services–with the expansion of AI-enabled digital health, the universe of potential health inferences will also expand, triggering new concerns about patient and consumer privacy. At this intersection of reproductive health privacy and AI concerns, state legislators and federal regulators appear poised […]

[…] Jersey, only the Colorado Privacy Act’s implementing regulations required that DPAs occur prior to initiating processing. Following the NetChoice v. Bonta litigation, which saw California’s Age-Appropriate Design Code Act preliminarily enjoined, this requirement could raise First Amendment concerns if it is interpreted as a prior restraint on speech. 3. Thresholds for Applicability S332 is […]

[…] one company and then shared or sold to another. While data collection can benefit both you and businesses – like connecting with friends, getting directions, or sales promotions – it can also be used in invasive ways unless you take control. You can protect your personal data and information in many ways and control […]

[…] have the unique opportunity to showcase their papers. Authors of U.S. focused papers will present their work at the Privacy Papers for Policymakers ceremony on February 27, 2024, in Washington, D.C. Winning papers with an international focus will be presented at a virtual event on March 1, 2024. “Academic scholarship is an essential resource […]

[…] sometimes longer. According to the discussion paper, the FDA strives to “facilitate innovation while safeguarding public health” and plans to develop a “flexible risk-based regulatory framework that promotes innovation and protects patient safety.” Lesson 2: Different uses of data may implicate different regulatory structures While there can be uncertainty regarding whether particular data, such […]

[…] sometimes longer. According to the discussion paper, the FDA strives to “facilitate innovation while safeguarding public health” and plans to develop a “flexible risk-based regulatory framework that promotes innovation and protects patient safety.” Lesson 2: Different uses of data may implicate different regulatory structures While there can be uncertainty regarding whether particular data, such […]

[…] pass broad-based consumer health data privacy legislation. Earlier this month, our Director for U.S. Legislation Keir Lamont took a look ahead at the state privacy landscape in 2024. For the 13th year, FPF recognized leading privacy research and analytical work with the Privacy Papers for Policymakers Award held on Capitol Hill. The winners spoke […]

[…] e-Safety Commissioner Several participants found deficits in the length and scope of the public consultation available throughout the process Participants identified several potential benefits of an industry code beyond its intended scope Participants broadly opposed any approach that would require otherwise encrypted messaging services to utilize content hashing and/or client-side scanning  Many participants discussed […]