The HIPAA Privacy Rule 15 Years Later: What’s Next?
On December 4th, FPF, Intel, and Duke in DC hosted “The HIPAA Privacy Rule 15 Years Later: What’s Next?” The event brought together stakeholders across the health data ecosystem to explore the current challenges related to the Health Information Portability and Accountability Act (HIPAA) Privacy Rule. Specifically, the discussion focused on solutions to mitigate restrictions to data sharing in clinical care and research due to administrative burdens, while at the same time maintain the privacy of protected health information (PHI).
AI and Machine Learning: Ethics, Governance, and Compliance Resources
The legal and regulatory landscape for AI and ML systems is changing rapidly. The list of resources here reflects the leading thinking from academics, regulatory agencies, and on-going projects and studies to provide the best guidance to commercial and public entities on implementing AI into their products and services. I. General AI & Ethics Resources […]
Privacy Best Practices for Consumer Genetic Testing Services
The Best Practices provide a policy framework for the collection, protection, sharing, and use of Genetic Data generated by consumer genetic testing services. These services are commonly offered to consumers for testing and interpretation related to ancestry, health, nutrition, wellness, genetic relatedness, lifestyle, and other purposes.
Ensuring School Safety While Also Protecting Privacy: FPF Testimony Before the Federal Commission on School Safety
Amelia Vance, FPF’s Director of Education Privacy, spoke today at the Federal Commission on Student Safety’s Listening Session. She asked that any Commission recommendations include the need for privacy “guardrails” around school safety measures to ensure that student privacy and equity are protected.
If You Can't Take the Heat Map: Benefits & Risks of Releasing Location Datasets
Strava’s location data controversy demonstrates the unique challenges of publicly releasing location datasets (open data), even when the data is aggregated.
Privacy Papers 2017: Spotlight on the Winning Authors
Today, FPF announced the winners of the 8th Annual Privacy Papers for Policymakers (PPPM) Award. This Award recognizes leading privacy scholarship that is relevant to policymakers in the United States Congress, at U.S. federal agencies, and for data protection authorities abroad.
Where Are They Now? FPF Trains a New Generation of Privacy Leaders
FPF offers up-and-coming privacy professionals fellowship opportunities, often giving college graduates experience in the privacy world. In this post, we will take a look at some of FPF’s former employees who have gone on to impressive privacy careers.
The Top 10: Student Privacy News (October-November 2017)
The Future of Privacy Forum tracks student privacy news very closely, and shares relevant news stories with our newsletter subscribers. Approximately every month, we post “The Top 10,” a blog with our top student privacy stories.
Spotlight on PPPM Judges (2017)
In December, the Future of Privacy Forum will announce the winners of the 2017 Privacy Papers for Policymakers Award. Each year, FPF awards the Privacy Papers for Policymakers Award to the authors of leading privacy research and analytical work that is relevant to policymakers in the United States Congress, at U.S. federal agencies, and for data […]
FPF-CAN Speaker Series featuring Mary Madden and Michele Gilman
The FPF-Capital Area Academic Network invites you to join us for a roundtable discussion featuring Mary Madden (Researcher, Data & Society Institute) and Michele Gilman (Venable Professor of Law and Director of Clinical Education, University of Baltimore School of Law). Mary and Michele will discuss their latest research: “Privacy, Poverty and Big Data: A Matrix of Vulnerabilities for Poor Americans.”