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By Christy Harris, Stacey Gray, and Meredith Richards As debates over the shape of federal privacy legislation in the United States continue, online advertising remains a key focus of scrutiny in the US Congress, with its recent hearing on digital advertising and data privacy. Amidst these debates, the Networking Advertising Initiative (NAI), the leading self-regulatory body […]

Carson Martinez is FPF’s Health Policy Fellow. She works on privacy challenges surrounding health data, particularly where it is not covered by HIPAA, as is the case with consumer-facing genetics companies, wearables, mobile health and wellness applications, and connected medical devices. Carson also leads the FPF Genetics Working Group and Health Working Group. How did […]

Understanding AI and its underlying algorithmic processes presents new challenges for privacy officers and others responsible for data governance in companies ranging from retailers to cloud service providers. In the absence of targeted legal or regulatory obligations, AI poses new ethical and practical challenges for companies that strive to maximize consumer benefits while preventing potential harms.

Company’s Deal with Law Enforcement Surprises Consumers and Is Out-of-Step with Industry Norms and Best Practices  By John Verdi and Carson Martinez Last week, FamilyTreeDNA announced an agreement with the FBI to allow agents to test DNA samples from crime scenes, develop genetic profiles, and identify familial matches. This agreement marks the first time a […]

New FPF Study Documents More Than 150 European Companies Participating in the EU-US Data Transfer Mechanism EU Companies’ Participation Grew by One Third Over the Past Year By Jeremy Greenberg Yesterday, the European Commission published its second annual review of the EU-U.S. Privacy Shield, finding that “the U.S. continues to ensure an adequate level of […]

These resources will help businesses and policymakers better understand and evaluate the growing use of face-based biometric technology systems when used for consumer applications. Facial recognition technology can help users organize and label photos, improve online services for visually impaired users, and help stores and stadiums better serve customers. At the same time, the technology often involves the collection and use of sensitive biometric data, requiring careful assessment of the data protection issues raised. Understanding the technology and building trust are necessary to maximize the benefits and minimize the risks.

The Best Practices provide a policy framework for the collection, protection, sharing, and use of Genetic Data generated by consumer genetic testing services. These services are commonly offered to consumers for testing and interpretation related to ancestry, health, nutrition, wellness, genetic relatedness, lifestyle, and other purposes.

Washington, DC – Today, Future of Privacy Forum, along with leading consumer genetic and personal genomic testing companies 23andMe, Ancestry, Helix, MyHeritage, and Habit, released Privacy Best Practices for Consumer Genetic Testing Services. The Best Practices provide a policy framework for the collection, protection, sharing, and use of Genetic Data generated by consumer genetic testing services. These services are commonly offered to consumers for testing and interpretation related to ancestry, health, nutrition, wellness, genetic relatedness, lifestyle, and other purposes.

CES 2018 brought to light many exciting advancements in consumer technologies. Without a doubt, Smart TVs, Smart Homes, and voice assistants were dominant: LG has a TV that rolls up like a poster; Philips introduced a Google Assistant-enabled TV is designed for the kitchen; and Samsung revealed its new line of refrigerators, TVs, and other home devices powered by Bixby, their intelligent voice assistant.

Notes from FPF On December 12, 2017, FPF announced the winners of our 8th Annual Privacy Papers for Policymakers (PPPM) Award. This Award recognizes leading privacy scholarship that is relevant to policymakers in the United States Congress, at U.S. federal agencies, and for data protection authorities abroad. In this special issue of the Scholarship Reporter, you […]