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Research from Stanford Medicine and Empatica, Inc: Early Detection of COVID-19 Using Empatica Smartwatch Data
[…] all plans, processes, and frameworks throughout the research collaboration. Use Technology to Enhance Privacy. The Stanford research team and Empatica took advantage of technology, where possible, to promote privacy throughout the project. Stanford employed QR codes to prevent the need to share participant identifiers, including names and study record IDs, with Empatica. Use Privacy-Protective […]

FPF Issues Award for Research Data Stewardship to Stanford Medicine & Empatica, Google & Its Academic Partners
[…] health information. Using a researcher-friendly device, Empatica’s E4, that prevents the collection of geolocation data, IP address, or mobile International Mobile Equipment Identity (IMEI) identifiers. Using QR codes to link participants to specific wearable devices to ensure that participant names and study record IDs would not be shared. “A large part of our job […]

India’s new Intermediary & Digital Media Rules: Expanding the Boundaries of Executive Power in Digital Regulation
[…] liability and regulation of publishers of digital content have generated significant debate since their release in February 2021. The Information Technology (Intermediary Guidelines and Digital Media Ethics Code) Rules, 2021 (the Rules) have: recast the conditions to obtain ‘safe harbour’ from liability for online intermediaries, and unveiled an extensive regulatory regime for a newly […]

South Korea: The First Case Where the Personal Information Protection Act was Applied to an AI System
[…] and operate “Iruda.” Therefore, PIPC determined that ScatterLab processed the user’s personal information beyond the purpose of collection. In addition, ScatterLab posted its AI models on the code sharing and collaboration platform Github from October 2019 to January 2021, which included 1,431 KakaoTalk messages revealing 22 names (excluding last names), 34 locations (excluding districts […]

China: New Draft Car Privacy and Security Regulation is Open for Public Consultation
[…] The definitions of these three types of data mirror similar definitions in other Chinese laws or draft laws currently being considered for adoption, such as the Civil Code and, respectively, the Personal Information Protection Law and the Cybersecurity Law. Consistency across these laws indicates a harmonization of China’s emerging data governance regulatory model. Obligations […]

Automated Decision-Making Systems: Considerations for State Policymakers
[…] religion, health conditions, or other highly personal information). In some cases, non-sensitive data can act as a “proxy” for sensitive information (such as the use of zip code as a proxy for race). Data may also be obtained from sources of varying quality, accuracy, or ethical collection, for example: public records, government collection, regulated […]

A New Era for Japanese Data Protection: 2020 Amendments to the APPI
[…] they were collected. The 2020 Amendments and amended PPC Rules model the pseudonymization process on anonymization, requiring the removal of any (i) description, (ii) unique ‘personal identification code’ (as defined in the APPI), and (iii) information relating to the processing method performed to enable the removal of (i) and (ii) above. The immediate result […]

Supporting Responsible Research and Data Protection
[…] reforms to strengthen health data governance. These examples were viewed in the context of the WHO Global Strategy on Digital Health. Safeguards for health data sharing to promote innovation while protecting people’s privacy. These may include: 1) ethical review board oversight; 2) de-identification; 3) administrative, technical, and contractual safeguards; and 4) safeguards around cross […]

India: Massive overhaul of digital regulation, with strict rules for take-down of illegal content and Automated scanning of online content
On February 25, the Indian Government notified and published Information Technology (Guidelines for Intermediaries and Digital media Ethics Code) Rules 2021. These rules mirror the Digital Services Act (DSA) proposal of the EU to some extent, since they propose a tiered approach based on the scale of the platform, they touch on intermediary liability, content moderation, take-down […]

FPF Testifies on Maryland Student Data Privacy Bill
[…] be expanded by this legislation, to “provide expert recommendations on this topic help ensure the right balance.” Read Vance’s written testimony on HB 1062 here and watch the testimony here (add YouTube link teed up to the right time code). For more background on Maryland’s Student Data Privacy Council, statutorily created in 2019, click here.