California’s SB 980 Would Codify Strong Protections for Genetic Data
Author: John Verdi (Vice President of Policy) This week, SB 980 (the “Genetic Information Privacy Act”) passed the California State Assembly and State Senate, with near unanimous support (54-10 and 39-0). If signed by the Governor before the Sept. 30 deadline, the law would become the first comprehensive genetic privacy law in the United States, […]
Stacey Gray
California SB 980 Would Codify Many of FPF’s Best Practices for Consumer Genetic Testing Services, but Key Differences Remain
Authors: John Verdi (Vice President of Policy) and Katelyn Ringrose (Christopher Wolf Diversity Law Fellow) In July 2018, the Future of Privacy Forum released Privacy Best Practices for Consumer Genetic Testing Services. FPF developed the Best Practices following consultation with technical experts, regulators, leading consumer genetic and personal genomic testing companies, and civil society. The […]
Thermal Imaging as Pandemic Exit Strategy: Limitations, Use Cases and Privacy Implications
Authors: Hannah Schaller, Gabriela Zanfir-Fortuna, and Rachele Hendricks-Sturrup Around the world, governments, companies, and other entities are either using or planning to rely on thermal imaging as an integral part of their strategy to reopen economies. The announced purpose of using this technology is to detect potential cases of COVID-19 and filter out individuals in […]
A Closer Look at Genetic Data Privacy and Nondiscrimination in 2020
Florida lawmakers recently introduced HB 1189/SB 1564 – a bill that would prohibit life and long-term care insurers from basing coverage and rates or denying coverage based on individuals’ genetic information. Washington State lawmakers are considering a bill, HB 2485, that would prohibit life insurance companies and others from obtaining individuals’ genetic information from direct-to-consumer […]
Youth & Education Project Publications and Resources
Resources and Short Publications Student Privacy & Pandemics: Emergency Professional Development for Educators (June 2020) The General Data Protection Regulation: Analysis and Guidance for US Higher Education Institutions (May 2020) Online Learning Best Practices for Schools and Educators 2-pager (April 2020) Student Privacy 101 video series (January 2020) School Safety & Privacy: An Animated Introduction (June […]