FPF and Leading Health & Equity Organizations Issue Principles for Privacy & Equity in Digital Contact Tracing Technologies
With support from the Robert Wood Johnson Foundation, FPF engaged leaders within the privacy and equity communities to develop actionable guiding principles and a framework to help bolster the responsible implementation of digital contact tracing technologies (DCTT). Today, seven privacy, civil rights, and health equity organizations signed on to these guiding principles for organizations implementing […]
Research from Stanford Medicine and Empatica, Inc: Early Detection of COVID-19 Using Empatica Smartwatch Data
Tejaswini Mishra, PhD, Michael Snyder, PhD, Erika Mahealani Hunting, Alessandra Celli, Arshdeep Chauhan, and Jessi Wanyi Li from the Stanford University School of Medicine’s Department of Genetics, and Empatica Inc. are the recipients of the second-annual FPF Award for Research Data Stewardship. The collaboration between the research team from Stanford Medicine and Empatica, a medical […]
Google: COVID-19 Community Mobility Reports
Google has been recognized with the second-annual FPF Award for Research Data Stewardship for its work to produce, aggregate, anonymize, and share data on community movement during the COVID-19 pandemic. Google’s Community Mobility Reports go through a robust anonymization process that employs differential privacy techniques to ensure that personal data, including an individual’s location, movement, […]
FPF Health and AI & Ethics Policy Counsels Present a Scientific Position at ICML 2020 and at 2020 CCSQ World Usability Day
On November 12, 2020, FPF Policy Counsels Drs. Rachele Hendricks-Sturrup and Sara Jordan presented privacy-by-design alongside human-centered design concepts during the 2020 CCSQ World Usability Day virtual conference. This presentation followed Drs. Hendricks-Sturrup’s and Jordan’s July 2020 scientific position paper presented at the International Conference on Machine Learning (ICML) 2020, entitled “Patient- Reported Outcomes: A Privacy-Centric and Federated Approach […]
Workshop Report: Privacy & Pandemics – Responsible Use of Data During Times of Crisis
In October 2020, the Future of Privacy Forum (FPF) convened a virtual workshop entitled “Privacy and Pandemics: Responsible Uses of Technology and Health Data During Times of Crisis” with invited computer science, privacy law, public policy, social science, and health information experts from around the world to examine benefits, risks, and strategies for the collection […]
24 Organizations Release Principles for Protecting Student Data Privacy and Equity in the Pandemic
The Future of Privacy Forum (FPF) and 23 other education, healthcare, disability rights, data protection, and civil liberties organizations today released Education During a Pandemic: Principles for Student Data Privacy and Equity (available here). The Principles offer 10 guiding recommendations for schools as they rely on new technologies and data to facilitate remote, in-person, or […]
Dr. Lauren Gardner, Creator of Johns Hopkins University’s COVID-19 Dashboard, and UC Berkeley Data Analytics Researcher Dr. Katherine Yelick to Keynote FPF Conference on Privacy & Pandemics
Workshop Explores the Value and Limits of Data and Technology in the Context of the COVID-19 Pandemic Today, the Future of Privacy Forum announced a pair of distinguished professors and researchers will be the keynote speakers for a two-day virtual workshop exploring the value and limits of data and technology in the context of a […]
FPF Submits Comments Regarding Data Protection & COVID-19 Ahead of National Committee on Vital and Health Statistics Hearing
Yesterday, FPF submitted comments to the National Committee on Vital and Health Statistics (NCVHS) ahead of a Virtual Hearing of the Subcommittee on Privacy, Confidentiality, and Security on September 14, 2020. The hearing will explore considerations for data collection and use during a public health emergency, in light of the deployment of new technologies for […]
Call for Position Statements on Responsible Uses of Technology and Health Data During Times of Crisis
Event Overview The Future of Privacy Forum, in collaboration with the National Science Foundation, Duke Sanford School of Public Policy, SFI ADAPT Research Centre, Dublin City University, and Intel Corporation presents Privacy & Pandemics: Responsible Uses of Technology and Health Data During Times of Crisis — An International Tech and Data Conference, including a two day […]
California’s SB 980 Would Codify Strong Protections for Genetic Data
Author: John Verdi (Vice President of Policy) This week, SB 980 (the “Genetic Information Privacy Act”) passed the California State Assembly and State Senate, with near unanimous support (54-10 and 39-0). If signed by the Governor before the Sept. 30 deadline, the law would become the first comprehensive genetic privacy law in the United States, […]