Posts by Katelyn Ringrose

|

Five Top of Mind Data Protection Recommendations for Brain-Computer Interfaces

By Jeremy Greenberg, [email protected] and Katelyn Ringrose [email protected]    Key FPF-curated background resources – policy & regulatory documents, academic papers, and technical analyses regarding brain-computer interfaces are available here.  Recently, Elon Musk livestreamed an update for Neuralink—his startup centered around creating brain-computer interfaces (BCIs). BCIs are an umbrella term for devices that detect, amplify, and […]

|

FPF Releases Follow-Up Report on Consumer Genetics Companies and Practice of Transparency Reporting

Today, the Future of Privacy Forum (FPF) published “Consumer Genetic Testing Companies & The Role of Transparency Reports in Revealing Government Requests for User Data,” examining how leading consumer genetic testing companies require valid legal processes before disclosing consumer genetic information to the government, as well as how companies publish transparency reports around such disclosures. […]

|

California SB 980 Would Codify Many of FPF’s Best Practices for Consumer Genetic Testing Services, but Key Differences Remain

Authors: John Verdi (Vice President of Policy) and Katelyn Ringrose (Christopher Wolf Diversity Law Fellow)  In July 2018, the Future of Privacy Forum released Privacy Best Practices for Consumer Genetic Testing Services. FPF developed the Best Practices following consultation with technical experts, regulators, leading consumer genetic and personal genomic testing companies, and civil society. The […]

|

Supreme Court Rules that LGBTQ Employees Deserve Workplace Protections–More Progress is Needed to Combat Unfairness and Disparity

Authors: Katelyn Ringrose (Christopher Wolf Diversity Law Fellow) and Dr. Sara Jordan (Policy Counsel, Artificial Intelligence and Ethics) Today’s Supreme Court ruling in Bostock v. Clayton County—clarifying that Title VII of the Civil Rights Act bans employment discrimination on the basis of sexual orientation and gender identity—is a major victory in the fight for LGBTQ […]

|

FPF and Privacy Analytics Identify “A Practical Path Toward Genetic Privacy”

Paper highlights de-identification standards, re-identification research, and emerging technical, contractual, and policy protections that can safeguard genetic data while supporting research. Genomic data is arguably the most personal of all personally identifiable information (“PII”). Techniques to de-identify genomic data to limit privacy and security risks to individuals–while that data is used for research and statistical […]

|

Privacy and Pandemics: A Thoughtful Discussion

As the COVID-19 virus spreads, governments, researchers, and healthcare institutions are seeking to obtain and deploy consumer data to track the spread of the virus, deliver emergency supplies, target travel restrictions and quarantines, and develop vaccines and cures. But can data collected from phones, credit cards, and other sources be used in this emergency without […]

|

Questions to Ask Before You Buy a Genetic Testing Kit on Black Friday

By Rachele Hendricks-Sturrup and Katelyn Ringrose On Black Friday and Cyber Monday, millions of consumers will hurry to their nearest doorbuster sale or boot up their favorite sales portal to buy a price-slashed consumer genetic testing kit. Some genetic testing kits will be up to half off this year, and the market as a whole […]