Healthcare technologies are rapidly evolving, producing new data types and innovative data uses. Data and technology can bring significant enhancements to the healthcare system, deepen patients’ and consumers’ engagement and understanding about their health, and be used as part of initiatives meant to improve health outcomes. It is critical to analyze how sensitive health and wellness data affect individual privacy and understand what it means for doctors, researchers, and companies to responsibly use such data. The FPF health team continues to build on its prior work on Consumer Wearables and Wellness Apps and Devices and Privacy Best Practices for Consumer Genetic Testing Services by exploring and addressing issues at the forefront and intersection of health, data, and privacy. Of main focus are the privacy challenges related to the collection, use, and sharing of both medical data and data that falls outside of the scope of HIPAA and FDA regulations. FPF brings together stakeholders to analyze how new technologies and data practices in the health ecosystem can impact individual privacy and promote the more effective and ethical use of data.
FPF Celebrates 15 Years! Spring Social Marks Board Transition as Data Protection Leaders Toast to FPF’s Success
Leaders in Data Protection Take Center Stage at FPF’s Spring Social The week started with FPF’s 15th Anniversary Spring Social, where FPF CEO Jules Polonetsky thanked FPF’s Board Chair and Founder Chris Wolf, who served for 15 years, and welcomed FPF’s new Board Chair, Alan Raul. Three leading data protection regulators lauded FPF’s effectiveness in […]
Event Recap: FPF X nasscom Webinar Series – Breaking Down Consent Requirements under India’s DPDPA
Following the enactment of India’s Digital Personal Data Protection Act 2023 (DPDPA), the Future of Privacy Forum (FPF) and nasscom (National Association of Software and Service Companies), India’s largest industry association for the information technology sector, co-hosted a 2-part webinar series focused on the consent-centric regime under the DPDP Act. Spread across two days (November […]
The DNA of Genetic Privacy Legislation: Montana, Tennessee, Texas, and Virginia Enter 2024 with New Genetic Privacy Laws Incorporating FPF’s Best Practices
In 2023, four states enacted new genetic privacy laws regulating direct-to-consumer genetic testing companies. This blog post provides details on what these new laws cover and how they compare to FPF’s widely-adopted Best Practices for Consumer Genetic Testing Services. Genetic privacy has been under increasing scrutiny at the state and federal levels, and regulators are […]
FPF Health & Wellness: Mapping the 2024 Health Privacy Landscape, A 2023 Retrospective
In 2024, health and wellness-focused companies are increasingly integrating AI to streamline their services–with the expansion of AI-enabled digital health, the universe of potential health inferences will also expand, triggering new concerns about patient and consumer privacy. At this intersection of reproductive health privacy and AI concerns, state legislators and federal regulators appear poised to […]
The Garden State Joins the Comprehensive Privacy Grove
On January 16, 2024, Governor Murphy signed S332 into law, making New Jersey the thirteenth U.S. State to adopt a comprehensive privacy law to govern the collection, use, and transfer of personal data. S332 endured a long and circuitous route to enactment, having been introduced in January 2022 and amended six times before being passed […]
Regu(AI)ting Health: Lessons for Navigating the Complex Code of AI and Healthcare Regulations
Authors: Stephanie Wong, Amber Ezzell, & Felicity Slater As an increasing number of organizations utilize artificial intelligence (“AI”) in their patient-facing services, health organizations are seizing the opportunity to take advantage of the new wave of AI-powered tools. Policymakers, from United States (“U.S.”) government agencies to the White House, have taken heed of this trend, […]
Regu(AI)ting Health: Lessons for Navigating the Complex Code of AI and Healthcare Regulations
Authors: Stephanie Wong, Amber Ezzell, & Felicity Slater As an increasing number of organizations utilize artificial intelligence (“AI”) in their patient-facing services, health organizations are seizing the opportunity to take advantage of the new wave of AI-powered tools. Policymakers, from United States (“U.S.”) government agencies to the White House, have taken heed of this trend, […]
Understanding Body-Related Data Practices and Ensuring Legal Compliance in Immersive Technologies
Organizations are increasingly incorporating immersive technologies like extended reality (XR) and virtual worlds into their products and services, blurring the boundaries between the physical and digital worlds. Immersive technologies hold the potential to transform the way people learn, work, play, travel, and take care of their health, but may create new privacy risks as well. […]
FPF in 2023: A Year in Review
As 2023 comes to an end, we want to reflect on a year that saw the Future of Privacy Forum (FPF) continue to expand its presence globally and domestically while organizing engaging events, publishing thought-provoking analysis, providing the latest expert updates, and more. FPF continues to convene industry experts, academics, consumer advocates, and other experts […]
Five Big Questions (and Zero Predictions) for the U.S. State Privacy Landscape in 2024
Entering 2024, the United States now stands alone as the sole G20 nation without a comprehensive, national framework governing the collection and use of personal data. With bipartisan efforts to enact federal privacy legislation once again languishing in Congress, state-level activity on privacy dramatically accelerated in 2023. As the dust from this year settles, we […]