Scientific research often requires access to personal information to unlock insights that will improve our world. For those insights to be trusted, however, any personal information must be processed in a lawful and ethical manner that respects privacy and security considerations.
FPF engages stakeholders across academia and industry to produce best practices and ethical review structures that promote responsible research. We elevate and honor responsible research collaborations through our events and awards, including the FPF Award for Research Data Stewardship. Our work is centered around streamlining, encouraging, and promoting responsible scientific research that respects essential privacy and ethical considerations throughout the process. FPF’s Ethical Data Use Committee (EDUC), for example, is an independent ethical review panel that reviews and evaluates the risks and benefits of organizations’ data-sharing projects with academic researchers. FPF works with policymakers to develop legislative protections that support effective, responsible research with strong privacy safeguards, including hosting events that allow policymakers and regulators to engage directly with practitioners from academia, advocacy, and industry.
FPF has an Ethics and Data in Research Working Group. This group receives late-breaking analysis of emerging US legislation affecting research and data, meets to discuss the ethical and technological challenges of conducting research, and collaborates to create best practices to protect privacy, decrease risk, and increase data sharing for research, partnerships, and infrastructure. Learn more and join here.
Report Analyzes the Role of Data Protection in Safeguarding Sexual Orientation and Gender Identity Information
While digital technology has empowered LGBTQ+ individuals to find community and access services, the increasing availability and use of connected devices have also created new privacy risks for LGBTQ+ communities. Today, the Future of Privacy Forum (FPF), a global non-profit focused on data privacy and protection, and experts from LGBT Tech — a national, nonpartisan […]
New FPF Study: More Than 250 European Companies are Participating in Key EU-US Data Transfer Mechanism
Co-Authored by: Drew Medway & Jeremy Greenberg European Companies’ Participation in Privacy Shield Up Nearly 30% from the Past Year. EU-US Privacy Shield Remains Essential to Leading European Companies. From Major Employers such as Logitech and Siemens to Leading Technology Firms like Telefónica and SAP, European Companies Depend on the EU-US Agreement. The Privacy Shield […]
New FPF Study: More Than 200 European Companies are Participating in Key EU-US Data Transfer Mechanism
Co-Authored by: Daniel Neally & Jeremy Greenberg EU Companies’ Participation in Privacy Shield Grew by More than One-Third Over the Past Year EU-US Privacy Shield Essential to Leading European Companies From Major Employers such as Aldi and Dr. Oetker to Leading Technology Firms like CRISPR Therapeutics and Workwave, European Companies Depend on the EU-US Agreement […]
New FPF Study Documents More Than 150 European Companies Participating in the EU-US Data Transfer Mechanism
New FPF Study Documents More Than 150 European Companies Participating in the EU-US Data Transfer Mechanism EU Companies’ Participation Grew by One Third Over the Past Year By Jeremy Greenberg Yesterday, the European Commission published its second annual review of the EU-U.S. Privacy Shield, finding that “the U.S. continues to ensure an adequate level of […]
The Good Data Collaborative seeks to identify gaps in resources to assist civil society in using data responsibly through distinct activities: a landscape assessment of existing tools and resources, as well as academic literature; a consultation with key stakeholders and current and potential users of the resources; and a redesigned, central repository of resources to help them address responsible data challenges in their work.